Dravet Stories
Tell us about yourself and the Dravet patient in your life At 29, Jake is among the growing group of adults with a diagnosis of Dravet syndrome. Our family is in the unique position of having almost three decades of experience of life with Dravet, and we share our story with hope that others will […]
Arianna lives in Texas with her parents and older sister. She loves music and likes to sing and dance. She also enjoy playing with her toys and swinging. When did Arianna’s seizures begin? Her seizures started the day after she turned 6 months old. The first two years she was hospitalized at least once a
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