Dravet Stories

Dravet Stories

Daliyah Dravet story


We are from Maine. We love to go for rides together as a family and we sing a lot of nursery rhymes a long the way. Our daughter really enjoys when we play learning songs to join in together. When did Daliyah’s seizures begin? She had very long seizures and some were polymorphic, changed in …

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Hadley Dravet story


Hadley is part of a small family from South-Central Kentucky. In the summer months, you can find them out on the lake in their boat or in the woods on their side-by-side. Swimming and fishing are some of their favorite things to do! When did Hadley’s seizures begin? Hadley’s seizures began at 4 months old. …

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Logan Dravet story


Hello! Logan is the oldest son of a busy family with three little boys, two dogs, a ferret and 5 chickens. They moved from California to Florida and have been living in Tampa for the last 5 years! We love to travel and go on adventures as a family. They do our best not to …

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Jane Dravet story


Jane lives in Tulsa, Oklahoma and loves music and going to the lake. She loves books and dancing and hugging everyone! When did Jane’s seizures begin? 5 1/2 months was her first seizure. We were told it was probably a one time thing but then it happened again… and again… and again. We finally had …

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Jake Dravet story

Meet Jake

Jake lives near Boston with his mom and dad. He has an older brother who lives and works in Boston. Jake is 25 years old and is in a home based program. He loves to be outside and loves visits from family and friends. When did Jake’s seizures begin? Seizures began at 7 months. Diagnosis …

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Arianna Dravet story


Arianna lives in Texas with her parents and older sister. She loves music and likes to sing and dance. She also enjoy playing with her toys and swinging. When did Arianna’s seizures begin? Her seizures started the day after she turned 6 months old. The first two years she was hospitalized at least once a …

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