Meet Jake

Jake Dravet story

Jake lives near Boston with his mom and dad. He has an older brother who lives and works in Boston. Jake is 25 years old and is in a home based program. He loves to be outside and loves visits from family and friends.

When did Jake’s seizures begin?

Seizures began at 7 months. Diagnosis at 10 years, reconfirmed at age 19.

What is your family’s hope for your future? For the Dravet community?

For Jake – to always feel loved, happy, safe and at peace. For the Dravet community – a cure.

What advice do you have for newly diagnosed families?

One day at a time. You will adjust over time and learn to live well with and despite Dravet.

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