Dravet Stories

Tell us about yourself and the Dravet Patient in your life My family and I live in Crossville, Tennessee. We love spending every day with our little warrior and watching his favorite movie, Toy Story. When did the patients seizures begin? Bentley’s first seizure was when he was 4 months old. It was a short […]

Tell us about yourself and the Dravet patient in your life Hi There!We are from Eastern Kentucky. Hudson “Blake” enjoys trips to the zoo and visiting local farms. He also loves music and dancing. When did the patient’s seizures begin? Hudson Blake and Grady Lee (identical twins) were born in September 2014 and were the

Tell us about yourself and the Dravet patient in your life Santiago Alessandro Anaya is a 3 yr old warrior and he will soon be having a baby brother, Ezequiel. His mommy is Valeria and his daddy is Jose Angel. We live in Del Rio, Tx. Santiago spends a lot of time with his grandparents

Tell us about yourself and the Dravet patient in your lifeThis is Cora. She is a 2 year old sweet and sassy little lady. She is a pandemic baby! She has an older sister named Maggie. Her mommy is Jen and daddy is Chris. She has a pet dog named Lager and a fish named

Tell us about yourself and the Dravet patient in your life Hello, This Is Jacob Dean. Jacob lives with his mother & step dad. We are from NE Ohio. He is going to be 11 years old August 2022. Jacob really enjoys skateboarding, he doesnt know how to push, but he can ride & hold

Tell us about yourself and the Dravet patient in your lifeI’m a single mom to my beautiful 11 year old daughter Sophia. We currently live in Aurora, CO. We love singing, dancing, reading books, cooking, and painting together. Other favorites of Sophia are bowling, riding her tricycle, playing board games, and going to school. When

Tell us about yourself and the Dravet patient in your lifeMusa is a happy baby, loves to explore and eat almost everything. He has 3 older siblings that love him so much! He loves the water and to be outside. We live in Dallas, TX! When did the patient’s seizures begin?Seizures started at 4 months

Tell us about yourself and the Dravet patient in your lifeWe live in Warton, Preston Lancashire, Tayla-mai has two older siblings, we enjoy going on dog walks and playing football in the garden. When did the patient’s seizures begin?Tayla-mai had a chest infection when she was 6 months old, I’d put her down for a

Tell us about yourself and the Dravet patient in your lifeWe live in Colorado and it gives us great joy to see Jeremiah run around and make sweet troubles. Happy to see him live his little yet hugely important life. He is so different as far as his diagnosed Dravet Syndrome and his awesome little

Tell us about yourself and the Dravet patient in your lifeWe are from Cincinnati, Jo Jo is currently 12. We love to attend events from A kid again, we live each day the best we can. When did the patient’s seizures begin?Jo started having seizures at 4 months old, seizures continued to increase and get