Dravet Stories

Tell us about yourself and the Dravet patient in your lifeI’m a single mom to my beautiful 11 year old daughter Sophia. We currently live in Aurora, CO. We love singing, dancing, reading books, cooking, and painting together. Other favorites of Sophia are bowling, riding her tricycle, playing board games, and going to school. When […]

Tell us about yourself and the Dravet patient in your lifeMusa is a happy baby, loves to explore and eat almost everything. He has 3 older siblings that love him so much! He loves the water and to be outside. We live in Dallas, TX! When did the patient’s seizures begin?Seizures started at 4 months

Tell us about yourself and the Dravet patient in your lifeWe live in Warton, Preston Lancashire, Tayla-mai has two older siblings, we enjoy going on dog walks and playing football in the garden. When did the patient’s seizures begin?Tayla-mai had a chest infection when she was 6 months old, I’d put her down for a

Tell us about yourself and the Dravet patient in your lifeWe live in Colorado and it gives us great joy to see Jeremiah run around and make sweet troubles. Happy to see him live his little yet hugely important life. He is so different as far as his diagnosed Dravet Syndrome and his awesome little

Tell us about yourself and the Dravet patient in your lifeWe are from Cincinnati, Jo Jo is currently 12. We love to attend events from A kid again, we live each day the best we can. When did the patient’s seizures begin?Jo started having seizures at 4 months old, seizures continued to increase and get

Tell us about yourself and the Dravet patient in your lifeTravis, our warrior, is 3 year-old. He is a fraternal twin. He also has a 4 year-old brother. We live in Paradise Valley, AZ. We love spending time as a family; going swimming, visiting grandparents, going on walks, having get-togethers at our home, etc. Our

Tell us about yourself and the Dravet patient in your lifeWe are from a small town in Pennsylvania. Londyn had a brother who is 7 and the biggest help when it comes to londyn and dravet. We love being outside but with londyn being tempsture sensitive that is hard to do for more then 30

Tell us about yourself and the Dravet patient in your lifeRachel (mom), Tyler (dad), sister (Riley age 5), and Brady (our warrior, age 21 months.) we also have two dogs a cat. We live in WV. For fun, we love to go on walks and play outside. Brady loves anything water related and playing with

Tell us about yourself and the Dravet patient in your life Tara loves visiting animals, shooting hoops with a basketball, going to the beach, eating eggplant parmesan and giving hugs and kisses. When did the patient’s seizures begin? Tara’s first seizure occurred at 6 months old and continued through approximately age 18 (seizures are fairly

Tell us about yourself and the Dravet patient in your lifeWe live in Ambler, Pennsylvania. Jaxton loves to go to Hershey park, the beach, the zoo, the aquarium, play with his cousins and play with his bunny and puppy. When did the patient’s seizures begin?With Jax, it seemed that nothing was wrong until a sudden