Decoding Dravet Blog

Helping you to learn about the past, present, and future of Dravet syndrome and the Dravet Syndrome Foundation. The Decoding Dravet Blog will keep you up to date on current research, treatment options, advocacy efforts, community activities, and other topics that are important to the Dravet syndrome community.

DSF Homepage Dravet Family

Marlins for Mason

The First Annual Marlins for Mason Billfish Release Tournament will be held August 4th and 5th in Ocean City, Maryland. Marlins for Mason is a non-profit marlin release tournament benefitting the Dravet Syndrome Foundation. Mighty Mason Prather is a 5-year-old Dravet warrior who lives in Ocean City, Maryland. Mason had his first seizure at 4 months old and was diagnosed …

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DSF Homepage Dravet Family

Nuevo grupo de apoyo en línea de hablar español de DSF en Facebook

“Aumentar la esperanza y cambiar vidas a través de la investigación” Esta es la declaración de la misión de Dravet Syndrome Foundation. Desde nuestra fundación en 2009, hemos involucrado y educado a pacientes, familias, médicos, investigadores, socios de la industria y otros para imaginar y luchar por mejores tratamientos, y algún día una cura para …

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DSF Homepage Dravet Family

Can Dravet syndrome be cured? Why research is so important.

The first question that is often asked by newly diagnosed families is when there will be a cure for Dravet syndrome. Rare diseases face common research challenges and Dravet syndrome is no exception. With a small patient population, research funding is typically non-existent and patient data is limited, making research difficult and financially unappealing to …

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DSF Homepage Dravet Family

Thank You, Bridget!

One of our very own patients deserves special recognition for her recent fundraising efforts. Bridget Fullam, an 18 year old living with a Dravet syndrome diagnosis from Montvale, NJ, has helped DSF secure $100,000 through two grants from The Marilyn Lichtman Foundation for our research grant program. Bridget met the President of the Foundation in …

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