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Mary Anne Meskis

Mary Anne was a founding member of DSF, stepping off of the Board to take the position of Executive Director in 2012. She is a passionate advocate for the Dravet syndrome community and has served in various capacities for the community prior to the inception of DSF in 2009. In addition, she currently serves on several epilepsy working groups, including the Epilepsy Leadership Council. She has owned and managed several small businesses in the private sector, spanning over 25 years. This business experience has translated well into her role as Executive Director. She is responsible for the overall organizational management and has continued to expand programming and fund development for DSF. Mary Anne resides in North Carolina with her husband and her youngest son, Elliot, who has Dravet syndrome. It is her son who drives her to be a catalyst for change within the Dravet syndrome community.

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See the Difference You Made – 2024 DSF Annual Report Now Available!

At DSF, we are guided by a commitment to transparency, accountability, and connection to our community. Each year, our annual report is more than just a summary of numbers – it’s a story of the lives we’ve touched, the progress we’ve made, and the vision that continues to guide our mission. Our 2024 Annual Report

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2025 DRAVET SYNDROME AWARENESS MONTH TOOLKIT

TOOLS TO SUPPORT YOUR AWARENESS EFFORTS: 30 Days of Advocacy Calendar Downloadable Dravet Facts graphics Turning Awareness Into Action: Tips for Advocating Six ways to #AdvocateforDravet graphic Protect essential programs funding graphic Example emails to legislators “I Advocate for Dravet” customizable template “My Dravet Warrior Is” customizable template “Three Things I Wish You Knew” template

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DSF Receives Platinum Nonprofit Seal of Excellence

DSF is proud to announce that it has once again received the Platinum Seal of Transparency from Candid, the highest level of recognition offered by the nonprofit information platform formerly known as GuideStar. This prestigious designation underscores DSF’s ongoing commitment to transparency, accountability, and trustworthiness. Candid’s Seals of Transparency – Bronze, Silver, Gold, and Platinum

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Mike Chieco 500sq

Mike Chieco

Mike lives in San Francisco, CA with his wife Kira and their daughter Mila – who has Dravet syndrome. Mila was diagnosed in November 2023, after prolonged, intractable seizures at daycare. Despite Dravet Syndrome, Mila is a charismatic and curious two year old who delights in learning, exploring, and driving the family cat, Petunia, crazy

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