Mary Anne Meskis

This year marks an important milestone for the Dravet Syndrome Foundation (DSF): ten consecutive years of earning the Platinum Seal of Transparency from Candid (formerly GuideStar). While seals and ratings are never the reason we do our work, this recognition reflects something that has always been fundamental to our mission – our commitment to transparency, […]

Please join us in welcoming our new Marketing Manager & Digital Communications Manager, Amanda (Mandy) Nehme-Clicerio.  Mandy brings a blend of professional marketing expertise and lived Dravet caregiver experience to her role as Marketing & Digital Communications Manager at DSF. Based in New Jersey, she has spent nearly a decade in B2B marketing roles, building

We’re excited to share that registration is now open for the 2026 Dravet Syndrome Foundation (DSF) Family & Professional Conference, taking place June 25–27 in Orlando, Florida! This much-anticipated biennial event brings together families, caregivers, clinicians, researchers, and industry partners for several inspiring days of learning, connection, and community. Whether you are a parent navigating

Looking ahead to the coming year, we are committed to building on the momentum our community has created. With your support, we will broaden our efforts, deepen our impact, and continue moving our mission forward. Thank you for being part of our story – we need your help to continue this work. With potentially disease-modifying

As the year comes to a close, I wanted to take a moment to reflect on what you helped make possible, and to thank you for your continued commitment to the Dravet patient community and DSF. Thanks to our extraordinary community of supporters, this year was one of progress, impact, and meaningful change. Through our