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DSF Family Network and Brand Ambassadors

One of the facets of DSF is the Family Network and Brand Ambassador programs. Both programs are made up of caregivers of Dravet syndrome patients. These volunteers act as signposts to help guide others to our organization who are looking for support, education, and awareness. They help facilitate communication within our community, between our community and DSF, and help to further the mission of our foundation. They do this by engaging in social media, our online support groups, fundraising, and attending live and virtual events. Family Network Ambassadors are selected from each of the five regions: West, Mountain, Midwest, Northeast, and Southeast.  

A #DSFAmbassador is an irreplaceable part of #TeamDSF. Learn more about our Ambassadors below and reach out to us for support. We will begin accepting applications for Brand Ambassadors in Spring of 2025, and applications for Family Network Ambassadors in late fall of 2025!

This program is supported through unrestricted grants by our sponsors:

Jazz Pharmaceuticals Logo      UCB

Northeast Family Network Ambassadors

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Amy Lopez - MA

Northeast Ambassador

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Siobhan Grevelding - NY

Northeast Ambassador

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Aleksi Ilmonen - NJ

Northeast Ambassador

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Jennifer Marasco Kuhn - PA

Northeast Ambassador


Southeast Family Network Ambassadors

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Allen Golec - FL

Southeast Ambassador

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Brenda Ferrell - TN

Southeast Ambassador

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Erin Frost - NC

Southeast Ambassador

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Tatiana Lopez - FL

Southeast Ambassador

Midwest Family Network Ambassadors

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Brenda Tisdale - IL

Midwest Ambassador

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Kayci Capps - MO

Midwest Ambassador

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Tina McDermott - IA

Midwest Ambassador

Mountain Family Network Ambassadors

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Sarah Reyes - TX

Mountain Ambassador

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Brian Wilson - CO

Mountain Ambassador

West Family Network Ambassadors

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Morgan Turpin - CA

West Ambassador

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