Family Network and Brand Ambassadors
DSF Family Network and Brand Ambassadors
One of the facets of DSF is the Family Network and Brand Ambassador programs. Both programs are made up of caregivers of Dravet syndrome patients. These volunteers act as signposts to help guide others to our organization who are looking for support, education, and awareness. They help facilitate communication within our community, between our community and DSF, and help to further the mission of our foundation. They do this by engaging in social media, our online support groups, fundraising, and attending live and virtual events. Family Network Ambassadors are selected from each of the five regions: West, Mountain, Midwest, Northeast, and Southeast.
A #DSFAmbassador is an irreplaceable part of #TeamDSF. Learn more about our Ambassadors below and reach out to us for support. We will begin accepting applications for Brand Ambassadors in Spring of 2025, and applications for Family Network Ambassadors in late fall of 2025!
This program is supported through unrestricted grants by our sponsors:
Northeast Family Network Ambassadors

Amy Lopez - MA
Northeast Ambassador

Siobhan Grevelding - NY
Northeast Ambassador

Aleksi Ilmonen - NJ
Northeast Ambassador

Jennifer Marasco Kuhn - PA
Northeast Ambassador
Southeast Family Network Ambassadors

Allen Golec - FL
Southeast Ambassador

Brenda Ferrell - TN
Southeast Ambassador

Erin Frost - NC
Southeast Ambassador

Tatiana Lopez - FL
Southeast Ambassador
Midwest Family Network Ambassadors

Brenda Tisdale - IL
Midwest Ambassador

Kayci Capps - MO
Midwest Ambassador

Tina McDermott - IA
Midwest Ambassador