DSF Family Network and Brand Ambassadors

DSF Family Network Ambassadors (FNAs) are trained parent volunteers who provide peer support, mentorship, and resources to families affected by Dravet syndrome, often acting as the first point of contact for newly diagnosed families. They foster community connection, organize local fundraisers, and share lived experiences. 

You can meet our FNAs below. Applications for the next cohort will reopen in fall 2027.

This program is supported through unrestricted grants by our sponsors:

Jazz Pharmaceuticals Logo      UCB

DSF Brand Ambassadors are dedicated volunteers—often parents or caregivers—who raise awareness for Dravet syndrome by sharing educational content and personal stories on social media

Applications for DSF Brand Ambassadors will open in the late spring of 2026. For questions, please reach out to Austin at austin@dravetfoundation.org

DSF Family Network Ambassadors

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Laura Fahy

New Jersey

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Aleksi Ilmonen

New Jersey

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Amy Lopez

Massachusetts

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Brandee Murray

North Carolina

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Christina Osenbach

North Carolina

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