One of the facets of DSF is the Family Network and Brand Ambassador programs. Both programs are made up of caregivers of Dravet syndrome patients. These volunteers act as signposts to help guide others to our organization who are looking for support, education, and awareness. They help facilitate communication within our community, between our community and DSF, and help to further the mission of our foundation. They do this by engaging in social media, our online support groups, fundraising, and attending live and virtual events. Family Network Ambassadors are selected from each of the five regions: West, Mountain, Midwest, Northeast, and Southeast.  

A #DSFAmbassador is an irreplaceable part of #TeamDSF. Learn more about our Ambassadors below and reach out to us for support. DSF is now accepting applications for the Family Network Ambassadors! We will once again begin accepting applications for the Brand Ambassador program in Spring 2026.

DSF is opening applications for our Family Network Ambassador Program!
If you are looking to give back to our community, we encourage you to learn more and apply.

Family Network Ambassadors are integral to the growth and development of our family support programs. They are often the first fellow Dravet parents a newly diagnosed family speaks. That first connection can be monumental in our journeys with Dravet syndrome.

The DSF Family Network is a program for parents and families in the U.S. aimed at providing more localized support and resources for families. This is made possible with support from our team of volunteer Family Network Ambassadors. This is a volunteer position and is not compensated. 

To become a Family Network Ambassador, you must:

• Be the parent, legal guardian, or a primary caregiver responsible for the medical care and daily decision-making for an individual with Dravet syndrome
• Be an active member of the DSF Family Network and be engaged in the community 
• Be willing to commit to a two-year volunteer term (January 2026 through December 2027)

All Family Network Ambassadors are expected to:

• Engage with community by responding to posts in our Facebook support groups
• Support parents and caregivers directly either by one on one conversations or in a group setting through virtual or in person events
• Participate in required FNA specific training sessions
• Participate in quarterly one-hour conference calls to discuss the progress of the program and upcoming events
• Attend DSF’s Biennial Family & Professional Conference in Orlando from June 25-27th, 2026 and a regional Day of Dravet workshop in 2027 (some travel support is provided)
• Participate, host, or volunteer in at least two fundraising events per year (virtual or in person)
• Host and plan a local/regional Dravet family gathering (also called Caregiver Connect) event each year (virtual or in person – also eligible for a Caregiver Connect Grant)
• Maintain a social media presence sharing about DSF and Dravet syndrome
• Commit to dedicating an average of 3-5 hours monthly for this work

Applications will close on December 5th, 2025

To apply, please email austin@dravetfoundation.org or apply on our website at this link.

This program is supported through unrestricted grants by our sponsors: