The mission of Dravet Syndrome Foundation (DSF) is to aggressively raise funds for Dravet syndrome and related epilepsies; to support and fund research; increase awareness; and to provide support to affected individuals and families. Our dedicated board members serve as fiduciaries and play a vital role in ensuring DSF has a sustainable future by adopting sound, ethical, and legal governance, and financial management policies, as well as by making sure the nonprofit has adequate resources to advance its mission.
After completing two terms, Board President, Kate Hintz, stepped down on April 1, 2023. Her daughter Morgan was diagnosed with Dravet syndrome at only 6 months old. Although they received an early diagnosis, Morgan was medically fragile for the first two years of life, suffering frequent seizures and related medical complications. Her family turned to organizations like DSF for guidance and support. The outreach and leadership of the organization inspired Kate to get involved with DSF. Kate has been a valued board member who has provided visionary leadership for the board and staff and we look forward to having her continued involvement in the organization in other capacities.
With Kate’s departure, Theron (Ted) E. Odlaug, PhD who has served on the DSF board since 2019 (most recently as board vice president) will step into the role of board president. Ross Nicholas, former board secretary, will now serve as the board’s vice president, and board member Clare Carey will assume the role of board secretary. Josh Goldman will continue as treasurer. Nathan Batt, Ashley Kerns, and Joseph Sullivan, MD will continue as board members.
Our newest board member, Brad Galer, MD, began his three-year term with DSF effective April 1st. Dr. Galer was formerly with Zogenix, serving as their Executive Vice President and Chief Medical Officer and is now the Chief Medical Officer at Rapport Therapeutics. Prior to working in industry, Dr. Galer held numerous academic and clinical appointments. He completed his medical doctorate and a neurology residency at Albert Einstein College of Medicine in New York, and two pain fellowships at Memorial Sloan Kettering Cancer Center in New York and the University of California San Francisco and was on faculty at the University of Washington School of Medicine. He has over 150 publications in epilepsy and pain management.
To read more about our current board members, please visit this page.
If you are interested in serving on our Board, please view this page for additional information.