In last week’s blog post, we introduced the C.A.R.E. (Caring for Adults with Rare Epilepsy) Binder and how it can help with transition planning. In this week’s blog, we’re diving into how to get started with the C.A.R.E. Binder, along with the next steps to help you make the most of it.
When beginning the planning process, it’s helpful to start by documenting your loved one’s daily routine – such as their schedule, care providers, communication methods, and the type of assistance they need each day. Below is a complete list of the information you’ll want to gather. The fillable pages in the C.A.R.E. Binder make it easy to work through each section at your own pace and update details whenever necessary.
Daily Living Considerations
- Appointment Schedule & Checklist
- Bathing & Personal Hygiene
- Communication Needs
- Crisis Planning Guide
- Day Programs
- Dressing
- Feeding & Nutrition Needs
- Living Arrangements
- Mobility
- Respite & Self-Care
- Safety
- Sleeping Arrangements & Bedtime Routine
- Summary Introduction to My Loved One
- Supported Employment (for the few who may qualify)
- Toileting
In addition, it’s important to document all aspects of your loved one’s disease management. This includes detailed information about their healthcare providers, insurance coverage, current medications and dosages, as well as any condition-specific plans such as a seizure action plan. Keeping this information organized and easily accessible ensures that you – and anyone involved in their care – can respond quickly and confidently in both routine and emergency situations
Disease Management
- Medical Care Team Contact Information
- Medical Equipment
- Medical Insurance Information
- Medication Information
- Medication Refills
- Medication Schedule
- Seizure Action Plan
- Supply Refills
- Things to Avoid
We hope you’ll take the next step in building out your loved one’s C.A.R.E. Binder by starting to review and gather the key details in both of these areas. Having this information in one place can make managing your loved one’s care a lot easier and less overwhelming, both for everyday needs and when unexpected situations come up.
Be sure to check back next week for our blog on the C.A.R.E. Binder, where we’ll dive into long-term care planning and medical transitions!
