Stay up to date with our Research & Community News and our Decoding Dravet Blog
- Join our email list to receive research and community news at this link
- Copy this link to your RSS Feed for our blog updates (Click here to learn What is RSS?)
- All
- Community News & Programs
- Decoding Dravet Blog
- Research News
NINDS 75th Anniversary
In 2025, the National Institute of Neurological Disorders and Stroke (NINDS) marks its 75th anniversary, celebrating a legacy that began in 1950. This milestone underscores ...
From Discovery to Delivery: How Science and Policy Are Shaping a New Era for Gene Therapy
Scientific advances in gene and cell therapy are moving fast. CRISPR-based therapies are being developed in record time to help children with life-threatening conditions. At ...
Why Can One Child Get a Groundbreaking Treatment – But Not Thousands Like Mine?
A recent medical breakthrough resulted in the successful treatment of a child with a rare genetic disorder with a personalized CRISPR gene editing therapy developed ...
From Heartbreak to Hope: A Family’s Mission to Catch a Cure for Dravet Syndrome
I never imagined I’d become the parent of a child with a rare disease. I never pictured a life built around emergency medications, seizures, feeding ...
Bentley’s Story: A Bright Light Through the Darkness of Dravet
As Dravet Remembrance Day approaches on June 15th, we’d like to share a heartfelt blog post written by Blake Fish about her son, Bentley. Bentley ...
Dye It for Dravet: Show Your Colors, Support the Cause
June is almost here, and that means it’s time to break out the bold colors and stand up for a powerful cause – Dye It ...
Join Our Mailing List
DSF’s News & Notes provide information on current research, our community, our programs, the grants we award, and upcoming fundraisers & special events. Sign up to receive our monthly updates in your inbox!
