DSF & Dravet Syndrome News
Keep up to date on current information in our Decoding Dravet Blog, our DSF Research Review and our monthly News & Notes.
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2022 Patient Assistance Grant Program is Now Open!
March 4, 2022
Our Patient Assistance Grant (PAG) program has been a part of our advocacy efforts since our inception in 2009. While it cannot fulfill all of ...
Give Up Your Cup for the Dravet Syndrome Community
February 25, 2022
Our annual Give Up Your Cup virtual fundraiser asks you to give up your coffee, tea or other “cup” for one day, one week, one ...
Sending Encouragement on Caregiver Appreciation Day
February 18, 2022
Caregiver Appreciation Day is observed each year on the 3rd Friday in February. This year, on February 18th, we honor those who give endlessly of ...
SAP Awareness Week
February 15, 2022
Do you have a Seizure Action Plan? A seizure is a medical emergency. A Seizure Action Plan (SAP) incorporates tailored guidelines on how to respond ...
Patient Assistance Grants
February 15, 2022
Patient Assistance Grant Program Opens March 1 Do you need assistance in obtaining items that are not covered through insurance? DSF is here to help ...
Will You Give Up Your Cup?
February 15, 2022
Give Up Your Cup Each March, DSF challenges you to Give Up Your Cup. This annual virtual fundraiser asks you to give up your coffee, ...
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DSF’s News & Notes provide information on current research, our community, our programs, the grants we award, and upcoming fundraisers & special events. Sign up to receive our monthly updates in your inbox!