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Article Recap: Quality of Life in Genetic DEEs
In today’s blog we are recapping a recent publication by Cohen et al that reported the results of a study aimed at better understanding the ...
How to Read a Scientific Paper; Part 3: Critical Assessment
Today’s blog post was created in collaboration with Tanya Brown, PhD the Science Director for TESS Research Foundation and was cross-posted to the Science Simplified ...
Phase 3 Trials for Soticlestat Begin
What is soticlestat? Soticlestat is an investigational medication that is currently in Phase 3 trials for the treatment of seizures in Dravet syndrome (1). Soticlestat ...
2022 Patient Assistance Grant Program is Now Open!
Our Patient Assistance Grant (PAG) program has been a part of our advocacy efforts since our inception in 2009. While it cannot fulfill all of ...
Give Up Your Cup for the Dravet Syndrome Community
Our annual Give Up Your Cup virtual fundraiser asks you to give up your coffee, tea or other “cup” for one day, one week, one ...
Sending Encouragement on Caregiver Appreciation Day
Caregiver Appreciation Day is observed each year on the 3rd Friday in February. This year, on February 18th, we honor those who give endlessly of ...
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