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Join DSF for Storytelling Sessions
As our community knows, rare diseases don’t receive as much attention from researchers or funders like diseases that affect larger populations. Most people do not ...
Welcome to our New Board Members!
We are excited to welcome our three new board members who began their 3-year term of service on April 15, 2022. Learn more about them ...
Dravet Syndrome International Consensus Project
Elaine C. Wirrell, MD – Mayo ClinicDSF Research Award – $75,000 (1 year project)Dravet Syndrome International Consensus Project (funding provide through unrestricted grants from Biocodex, Greenwich ...
Wings of Hope Butterfly Release
DSF is excited to be hosting its 2nd butterfly release, Wings of Hope, on June 25, 2022. This butterfly release will honor those living with ...
2022 Ciara’s Spirit of Hope Nominations are Open!
From 2010-2015, Ciara’s Butterfly Bash annual fundraising gala was named in honor of DSF Founder Lori O’Driscoll’s daughter. In January 2017, Ciara passed away from ...
Five Reasons to Attend the 2022 DSF Conference!
After having to postpone our scheduled conference in 2020, we are excited to be able to gather face-to-face again this June in Fort Worth, Texas. ...
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