Stay up to date with our Research & Community News and our Decoding Dravet Blog
- Join our email list to receive research and community news at this link
- Copy this link to your RSS Feed for our blog updates (Click here to learn What is RSS?)
- All
- Community News & Programs
- Decoding Dravet Blog
- Research News
Host a Family Gathering with a Caregiver Connect Grant
Being the parent of a child with Dravet syndrome can be lonely and isolating. It’s easy to feel like no one else “gets it”, that ...
Be sure your child’s school team is seizure-ready!
Having a child with Dravet syndrome attend school can pose many challenges and concerns for parents. It is important that you give the school staff ...
Virtual DSF Steps Toward a Cure
While we are excited to have some of our Steps Toward a Cure events happening back in person this year, we have decided to continue ...
2022 Day of Dravet Virtual Workshop
Day of Dravet Workshops are a time for patients and their families to come together to learn about research and treatment options, connect with one ...
Preclinical Development of a Gene Therapy for Dravet Syndrome
A recent publication from Tanenhaus et al details the preclinical work by Encoded Therapeutics that has led to the development of a potential gene regulation ...
McCall’s Journey
McCall was born August 28, 2018- perfectly healthy, without any complications. Four of the sweetest months later, still nestled in her car seat at her ...
Join Our Mailing List
DSF’s News & Notes provide information on current research, our community, our programs, the grants we award, and upcoming fundraisers & special events. Sign up to receive our monthly updates in your inbox!