Stay up to date with our Research & Community News and our Decoding Dravet Blog
- Join our email list to receive research and community news at this link
- Copy this link to your RSS Feed for our blog updates (Click here to learn What is RSS?)
- All
- Community News & Programs
- Decoding Dravet Blog
- Research News
2022 Day of Dravet Virtual Workshop
Day of Dravet Workshops are a time for patients and their families to come together to learn about research and treatment options, connect with one ...
Preclinical Development of a Gene Therapy for Dravet Syndrome
A recent publication from Tanenhaus et al details the preclinical work by Encoded Therapeutics that has led to the development of a potential gene regulation ...
McCall’s Journey
McCall was born August 28, 2018- perfectly healthy, without any complications. Four of the sweetest months later, still nestled in her car seat at her ...
Dravet Syndrome Voice of the Patient Report
DSF has released its Dravet Syndrome Voice of the Patient report, summarizing outcomes from a February 2022 Externally Led Patient Focused Drug Development (EL-PFDD) meeting. For ...
2022 DSF Family & Professional Conference Recap
The Dravet Syndrome Foundation (DSF) held a Family & Professional Conference in Fort Worth, Texas on June 23-25 of 2022 in collaboration with Dr. Scott ...
Join us this July and August in Cycling for a Cure!
Whether you are a beginner on the bike or a seasoned cyclist, our Century Ride is the challenge for you! Many cyclists love pedaling dozens ...
Join Our Mailing List
DSF’s News & Notes provide information on current research, our community, our programs, the grants we award, and upcoming fundraisers & special events. Sign up to receive our monthly updates in your inbox!