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Gobble, Gobble. Dash for Dravet is back!
Join our 7th annual Dash for Dravet on Thanksgiving Day! Before the feast, get your family and friends together for this virtual 5K (3.1 miles) ...
Dravet Dads Meet-Up Informational Kickoff
It is no secret that mothers and female caregivers make up the majority of our Dravet Syndrome Foundation Parent and Caregiver Support Group. Our community ...
Genetic Therapy for Dravet Syndrome: 2022 State of the Field
When the Dravet Syndrome Foundation was established in 2009, there were no specific treatments for patients with Dravet syndrome and limited guidelines on best treatment ...
Transitioning to Adulthood for Patients with Dravet Syndrome
When Dravet syndrome (DS) was first discovered by Dr. Charlotte Dravet in 1978, there was not a clear understanding of the expected lifespan for someone ...
Stiripentol (DIACOMIT): History and New Expanded Approval
In July of this year, the US Food and Drug Administration (FDA) authorized the use of stiripentol (DIACOMIT) for patients with Dravet syndrome aged 6 ...
DSF Strategic Plan Update
Much has changed in the field of Dravet syndrome since the inception of DSF in 2009. In 2018, DSF debuted its 5-year strategic plan to ...
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