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Transitioning to Adulthood for Patients with Dravet Syndrome
When Dravet syndrome (DS) was first discovered by Dr. Charlotte Dravet in 1978, there was not a clear understanding of the expected lifespan for someone ...
Stiripentol (DIACOMIT): History and New Expanded Approval
In July of this year, the US Food and Drug Administration (FDA) authorized the use of stiripentol (DIACOMIT) for patients with Dravet syndrome aged 6 ...
DSF Strategic Plan Update
Much has changed in the field of Dravet syndrome since the inception of DSF in 2009. In 2018, DSF debuted its 5-year strategic plan to ...
Host a Family Gathering with a Caregiver Connect Grant
Being the parent of a child with Dravet syndrome can be lonely and isolating. It’s easy to feel like no one else “gets it”, that ...
Be sure your child’s school team is seizure-ready!
Having a child with Dravet syndrome attend school can pose many challenges and concerns for parents. It is important that you give the school staff ...
Virtual DSF Steps Toward a Cure
While we are excited to have some of our Steps Toward a Cure events happening back in person this year, we have decided to continue ...
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