DSF & Dravet Syndrome News
Keep up to date on current information in our Decoding Dravet Blog, our DSF Research Review and our monthly News & Notes.
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DSF is hiring!
November 4, 2022
A signal of our organization’s growth and success is our need to add two new staff members to our team. We are excited to announce ...
Updated Professional Education Video Series
October 28, 2022
National Epilepsy Awareness Month in November is an annual event that teaches people about epilepsy’s causes and symptoms. During this month, many organizations join together ...
Bereavement Resources
October 21, 2022
Bereavement is a part of life, but in the world of Dravet syndrome, it can be a looming presence. For anyone who has lost their ...
Gobble, Gobble. Dash for Dravet is back!
October 14, 2022
Join our 7th annual Dash for Dravet on Thanksgiving Day! Before the feast, get your family and friends together for this virtual 5K (3.1 miles) ...
Dravet Dads Meet-Up Informational Kickoff
October 7, 2022
It is no secret that mothers and female caregivers make up the majority of our Dravet Syndrome Foundation Parent and Caregiver Support Group. Our community ...
Genetic Therapy for Dravet Syndrome: 2022 State of the Field
September 30, 2022
When the Dravet Syndrome Foundation was established in 2009, there were no specific treatments for patients with Dravet syndrome and limited guidelines on best treatment ...
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DSF’s News & Notes provide information on current research, our community, our programs, the grants we award, and upcoming fundraisers & special events. Sign up to receive our monthly updates in your inbox!