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Zorevunersen (STK-001) FAQs: Spotlight on the Upcoming Phase 3 Studies
This is an exciting time for the Dravet syndrome community. The first potentially disease-modifying treatment targeting the genetic cause of Dravet syndrome has completed initial ...
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CareCompass: A New Resource to Navigate Caregiving
DSF is pleased to share information about a new free platform developed by UCB, with input from the Dravet syndrome and Lennox-Gastaut syndrome patient communities: ...
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Dravet Syndrome Community Participates in Rare Disease Week on Capitol Hill
Several members of the Dravet syndrome community went to Washington, D.C. last week (February 24-26, 2025) to participate in Rare Disease Week on Capitol Hill. ...
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One Less Cup. One Big Difference.
On your mark. Get set. Give up your cup – again! #GiveUpYourCup kicks off this Saturday, and thanks to supporters like you, we’ve made ...
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Understanding Why Federal Funding for Research is Important for Dravet Syndrome
Dravet Syndrome Foundation (DSF) was established in 2009 with a mission largely focused on funding and advocating for Dravet-related research. To date, DSF has directed ...
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Feeling overwhelmed by the rapidly changing policy landscape and its impact on the Dravet syndrome community?
At DSF, we understand that keeping up with the quickly evolving changes happening right now can feel overwhelming as you try to determine what the ...
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