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Predicting Dravet syndrome outcomes: harnessing natural history data and biomarker discovery to inform early diagnosis and targeted intervention
Professor Andreas Brunklaus, MD, MRCPCH- Royal Hospital for Children GlasgowCharlotte Tye, PhD- King’s College LondonElaine Wirrell, MD- Mayo ClinicLaureate Professor Ingrid Scheffer AO MBBS PhD ...
Neuromodulation for Dravet Syndrome: Preclinical Validation of a Novel Therapeutic Mechanism
Ethan M. Goldberg, MD, PhD- The Children’s Hospital of Philadelphia Neuromodulation for Dravet Syndrome: Preclinical Validation of a Novel Therapeutic MechanismResearch Grant- $250,000 over 2 ...
Cell-type resolved molecular and functional pathology in Scn1a mutant mouse cerebellum
Alex Nord, PhD- University of California DavisDiasynou Fioravante, PhD- University of California Davis Cell-type resolved molecular and functional pathology in Scn1a mutant mouse cerebellumResearch Grant- ...
A Year of Gratitude and Progress for the Dravet Community
For families living with Dravet syndrome, 2025 has been a year filled with moments of hope, progress, and connection. Our community has come together to ...
2025 Recipients of the Sofie’s Journey Scholarship for Epilepsy Awareness Day at Disneyland
What a dream come true! Sofie’s Journey awarded our family a scholarship to attend Epilepsy Awareness Day at Disneyland (EADDL) this year. We have talked ...
3rd Annual Pedal for a Purpose Raises Awareness and Hope for Dravet Syndrome
What began as a simple 109-mile recreational bike ride through the scenic Black Hills has transformed into a mission that’s touching lives around the world ...
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