Stay up to date with our Research & Community News and our Decoding Dravet Blog

  • Join our email list to receive research and community news at this link
  • Copy this link to your RSS Feed for our blog updates (Click here to learn What is RSS?) 
  • All
  • Community News & Programs
  • Decoding Dravet Blog
  • Research News

Meet Our New DEI Coordinator, Gloria Rodriguez

I became involved with the Dravet Syndrome Foundation (DSF) to find a sense of control where there was none. Being active and trying to be ...

How is Cora doing? A mom’s musing on what that question is really asking.

“How is Cora doing?” is a typical question we get after our 4 year old daughter has had a seizure. It is a socially acceptable ...

2024 DSF Conference Recap

The 2024 DSF Family & Professional Conference took place June 20th to 22nd at the JW Marriott Minneapolis Mall of America in Minnesota. The meeting ...

2024 DSF Community Awards

At this year’s conference, we honored five individuals whose dedication and active participation in our mission are helping to drive advancements in the field of ...

Remembrance Day – June 15th

Dravet Syndrome Awareness Month takes place each June in the U.S., and International Dravet Syndrome Awareness Day is observed on June 23rd. This year, we ...

 15 Years of Raising Awareness of Dravet Syndrome

This year commemorates the 15th anniversary of DSF! We eagerly anticipate celebrating the initial 15 years of our impactful journey with you throughout 2024, sharing ...
Berkley Dravet story

Join Our Mailing List

DSF’s News & Notes provide information on current research, our community, our programs, the grants we award, and upcoming fundraisers & special events. Sign up to receive our monthly updates in your inbox!

Scroll to Top