Decoding Dravet Blog

Join DSF in Taking Steps Toward a Cure

Want to have fun while supporting DSF and raising awareness for Dravet syndrome? Join us at a Steps Toward a Cure event in your area!

DSF Steps Toward a Cure is a series of family-friendly events that raise awareness and funds while celebrating our Dravet superheroes. These events take place throughout the year, primarily in the fall, in communities nationwide. Consider joining us at an event near you!

Littleton, Colorado: September 8th
Milford, Michigan: September 14th
Scranton, PA: September 15th
Midlothian, Illinois: September 21st
Toledo, Ohio: September 21st
Lower Gwynedd Township, Pennsylvania: October 5th
Desloge, Missouri: October 12th
Boise, Idaho (Luck be Alexis): October 12th
Floral City, Florida: October 26th

If there isn’t a Steps Toward a Cure event in your area, we’d love to help you start one. As an event coordinator, you’ll be crucial to the success of DSF by raising funds and awareness for Dravet syndrome. Organizing an event is a rewarding way to unite families and friends for a fantastic cause, and you’ll be surprised by the generosity and support from your community.

Our Coordinator Handbook will provide you with a solid overview of the event planning process. To host an event, you will complete a coordinator application, and after approval, DSF covers the cost of your site, raffle permit (if needed), and any additional event fees. Feel free to contact Misty with any questions or to begin planning!

Mary Anne Meskis

Mary Anne was a founding member of DSF, stepping off of the Board to take the position of Executive Director in 2012. She is a passionate advocate for the Dravet syndrome community and has served in various capacities for the community prior to the inception of DSF in 2009. In addition, she currently serves on several epilepsy working groups, including the Epilepsy Leadership Council. She has owned and managed several small businesses in the private sector, spanning over 25 years. This business experience has translated well into her role as Executive Director. She is responsible for the overall organizational management and has continued to expand programming and fund development for DSF. Mary Anne resides in North Carolina with her husband and her youngest son, Elliot, who has Dravet syndrome. It is her son who drives her to be a catalyst for change within the Dravet syndrome community.