We’re excited to announce the 2026 DSF Biennial Family & Professional Conference will take place in beautiful Orlando, Florida at the
Renaissance Orlando at SeaWorld in Orlando, Florida.

This special event brings together families, caregivers, clinicians, and researchers to share knowledge, build connections, and strengthen our community.

You can look forward to:

• Educational sessions covering all facets of Dravet syndrome, including treatment, research, clinical trials, and day-to-day care
• A patient activity room designed with comfort and fun in mind
• Sibling camp to keep brothers and sisters engaged and supported
• Evening socials and dinners to foster new friendships and celebrate our journey

Conference agenda, hotel room block, and registration will open in January 2026!

Want to start budgeting to attend the event? You can download our Family Conference Budget Worksheet, here.

INTERESTED IN EARNING FREE REGISTRATION AND HOTEL FOR THE 2026 CONFERENCE? We are seeking 15 enthusiastic individuals to participate in the 2025 Champion Challenge by organizing a Steps Toward a Cure walk in your community. There are no costs involved in hosting the walk, and our team will support you throughout the planning process. Plus, your hard work could earn you free registration and hotel accommodations for our 2026 conference! Learn more about the Champion Challenge here.