Dravet Syndrome Awareness Month 2024

This June, take action.

Do your part (big or small) to give the Dravet syndrome community the recognition it deserves during Dravet Syndrome Awareness Month.  

Like & Share our Posts: Get connected with us on our social media channels so you can like and share our posts throughout June.

Spread Awareness on Social Media: This year we are excited to offer 30 customizable “Dravet Syndrome Facts” to make raising awareness easier and more personal. You can view and customize any or all 30 facts with your loved one’s photo. Visit this link to get started. Be sure to tag DSF and use the hashtag: #CureDravet.

Participate in a Fundraiser: Join us as we launch our 3rd annual Dye it for Dravet fundraising challenge from June 1st – June 30. Dye your hair, beard, or mustache to demonstrate your dedication to our quest for a cure! Participation is completely free of charge and if you raise $500 or more, you’ll be rewarded with a $50 voucher for our online store.

Honor those we’ve lost: Mark your calendar and join us for our tribute video on Facebook Live, airing on June 15th at noon EST for Dravet Remembrance Day.

Join the Global Movement: June 23rd is International Dravet Syndrome Awareness Day. On this day, DSF is joining our advocacy partners and families from around the world in raising awareness through a variety of initiatives.

  • Spread the word about Dravet syndrome and Dravet Syndrome Awareness Day by sharing information, including your family’s story. Incorporate hashtags like #CureDravet and #DravetAwarenessDay to amplify your message.
  • Educate others about Dravet syndrome by sharing information with your friends, family, and colleagues.
  • Sport your DSF swag to spark discussions and raise awareness of Dravet syndrome.
  • Seek a proclamation to draw your community’s focus and formally acknowledge Dravet syndrome. Proclamations can be requested at all levels of government. Some government websites provide proclamation request forms for direct submission. In cases where such forms are not available, you can search for email addresses on the government website to contact officials. You can find an example request here
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