Uncategorized

Time Session Speaker 10:00am-10:30am Registration & Breakfast 10:30am-10:45am Welcome Mary Anne Meskis – DSF Executive Director 10:45am-11:00am DSF Programs & Initiatives for Families Tatiana Lopez – DSF DEI Coordinator 11:00am-11:45pm Overview of Dravet Syndrome Veronica Hood, PhD – DSF Scientific Director 11:45am-12:15pm Valtoco to the Rescue Eric R. Vernier, MD 12:15pm-12:30pm Sibling Camp Update Laurie […]

Time Session Speaker 10:00am-10:30am Registration & Breakfast 10:30am-10:45am Welcome Veronica Hood, PhD – DSF Scientific Director 10:45am-11:00am DSF Programs & Initiatives for Families Erin Reoyo – DSF Family Network Liaison 11:00am-11:30pm Overview of Dravet Syndrome Kelly Knupp, MD – Children’s Hospital Colorado 11:30pm-12:00pm Valtoco to the Rescue Nancy Santilli, NP 12:00pm-12:15pm Sibling Camp Update Laurie

Thank you for submitting your loved one’s photo(s) for use in DSF awareness and marketing materials. In order to guarantee that photos will be high enough resolution for print materials and/or social media, please review the information below. What are high resolution or hi-res images? High resolution images are pictures or photos where the media

Not only do I work with this organization, but I am also a mother to a 3-year-old daughter who was diagnosed with this genetic mutation and had her first seizure at only 2 months old. It took our family about 3 months of constant ER visits, admissions, and testing before we were able to identify

Right click to save any of the images below for use in promoting this year’s Give Up Your Cup!

The heart of DSF is our patient community. We exist to push research forward in the field of Dravet syndrome and to offer support and advocacy for our patient families. To assure that our community never feels alone on this medical journey, we offer several free programs to connect and support our patient families. Click