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The White House recently unveiled a more detailed budget proposal that sheds additional light on the Trump administration’s plans to overhaul the Department of Health and Human Services (HHS) in the coming year. The proposal includes significant funding cuts to the National Institutes of Health (NIH). The revised budget reinforces earlier intentions to reduce the

We are pleased to share that on February 3, 2026, Congress passed, and the President signed, a spending package for federal Fiscal Year (FY) 2026.    The Rare Pediatric Disease Priority Review Voucher (PRV) Program was reauthorized for five years. This program gives pharmaceutical companies a priority review voucher upon Food and Drug Administration (FDA)

The Administration wants to close the U.S. Department of Education, and Congress needs to take action. Without an appropriate education, students with disabilities face higher rates of poverty, unemployment, poor health, and social isolation. The Department of Education is crucial for students with disabilities. It holds states accountable when they’re not meeting the needs of

There is a new effort underway to create a National Plan for the Epilepsies. This legislation, if passed, would direct the federal government to develop a National Plan for Epilepsy to prevent, diagnose, treat, and cure the epilepsies and improve the well-being of people with epilepsy and their families. We support anything that would bring

A caucus is a group of bi-partisan legislators that join together to support a specific cause. This newly formed Epilepsy Caucus will help to promote legislation that will benefit the epilepsy community, so we need to get as many members as possible to join. Click below to check to see if your legislators are already

We are pleased to share that on February 3, 2026, Congress passed, and the President signed, a spending package for federal Fiscal Year (FY) 2026.    It includes a provision for thhe Accelerating Kids’ Access to Care Act, which will help children covered by Medicaid or the Children’s Health Insurance Program (CHIP) access medical care

We are pleased to share that on February 3, 2026, Congress passed, and the President signed, a spending package for federal Fiscal Year (FY) 2026.   The package includes funding for the Departments of Defense and Health and Human Services, including:  $11.5 million for the Centers for Disease Control and Prevention (CDC)’s Epilepsy Program (level

Congress is beginning to make decisions about how much funding each program will get next year, and programs that support and protect people with disabilities are at serious risk. The President’s budget proposal is the starting point of this annual process. It recommends that Congress make cuts to programs that millions of people with disabilities