Decoding Dravet Blog

As we approach the end of the year, we are proud to look back on our achievements. DSF started in 2009, when four parents came together looking for connection with one another and a desire to improve outcomes for their own children who had been diagnosed with Dravet syndrome. Now, 14 years later, the success

Last week’s blog post was a brief overview about how the Family Network Ambassadors and the Brand Ambassadors function within our organization to help further the mission of DSF. But let’s dive deeper…  The mission of DSF is what drives us as a foundation and a community. We continually look for ways to deepen this

When you are going through something hard it’s always good to know that there are people “in the same boat” as you are. And while I appreciate the sentiment I’m not sure that it is the best way to talk about the community that we have as families living with Dravet syndrome. I think that

Have you heard the news? Dravet Syndrome Foundation (DSF) has earned a Four-Star rating by Charity Navigator, their highest possible rating. Their third-party accreditation validates our organization’s operational excellence and our rating reflects our strong financial health and ongoing accountability and financial transparency. And, this rating designates DSF as an official “Give with Confidence” charity!

Last week, I had the opportunity to attend the 2023 Park City Epilepsy Meeting and an open house for the NIH/NINDS Epilepsy Therapy Screening Program (ETSP) contract site at the University of Utah. DSF was proud to sponsor the Park City Epilepsy Meeting this year, which focused on cutting-edge approaches to transform epilepsy therapies. Take-aways

In 1896, Buffalo, N.Y. hosted the first-ever Turkey Trot. Only six runners participated in this holiday race, and they ran five miles down dirt roads in downtown Buffalo. In the early 1900’s the course was moved to pavement, but women did not compete until 1972. Year after year, runner participation increased in the original turkey