15 Years of DSF

Anna was born in September 2017 and diagnosed with Dravet syndrome in May 2018 after suffering from prolonged seizures. She has been to the hospital emergency room many times and experienced over 1200 seizures in her short life. Similar to other children living with DS, Anna faces significant challenges associated with her condition beyond the […]

Eden is full of love, compassion, and kindness. She is a green eyed, 9 year old sweetheart full of love, empathy, and sass. Eden is the most loving and caring person that you will ever meet and has a heart like no other. She sees the best in everyone and although she may not always

Breccan was born on October 2nd, 2014. He was a healthy, happy baby boy and developed normally for the first few years of his life.  Breccan had his first seizure in 2015 at only 4 months old. He developed a fever after his first round of shots and he began shaking on the left side

Hayden Stella Reyes was a healthy 5 pounds 11 ounce little girl born on March 25, 2014. She was just four months old when she had her first seizure. We were getting her ready for her second day of daycare when I noticed she started to convulse on one side of her body. Somehow, I

Owen is nothing short of tenacious and strong. Born on his due date at the end of October 2013, he was the picture of health to his parents Austin and Stewart in Southern Idaho. At three months of age he had his first seizure lasting over eight minutes. He wasn’t sick, there was no fever.

Peyton is a sweet, funny, tender hearted 12-year-old who loves Basketball, Taekwondo, playing with his siblings and anything video game related. Peyton has the biggest heart and wants to be friends with everyone. He shares homes with his mom (Brittany), Bonus Dad (Kevin), Dad (Derek), Bonus Mom (Lindsey). He is the older brother of Easton,

Julia is and has always been on her own path…  Born 9 days late, she is the light of our lives. Her first seizure was the day after her two-month vaccinations. She did a weird thing, shaking her left arm for a few minutes, then stopped and took a nap. We thought it was odd,

Elissa—also affectionately known as Lizzie-Lu and Lu-Lu by her team of caregivers—is our second daughter and was perfectly healthy when she was born. In February 2011, at just six months old, she had her first tonic-clonic (convulsive) seizure. It lasted over 30 minutes, and we felt helpless as we watched her endure. Soon after Elissa’s

Alaina is a sweet 19-year-old who lives in Smyrna, GA with her parents, Blaine & Shannon, and her siblings, Brandon and Courtney. She had her first seizure at four months old. It was the first of many prolonged and very scary seizures in her first few years of life. In 2009, at age 4.5, she