Kelly Knupp, MD, MSCS – Children’s Hospital Colorado Kelly Knupp is a Professor of Pediatrics and Neurology at the University of Colorado. She received her medical degree from the University of New Mexico – School of Medicine, completed her residency in Pediatrics at Children’s Hospital of New York followed by Pediatric Neurology Residency at Columbia […]
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Danielle Andrade, MD, MSc, FRCPC – University of Toronto Dr. Andrade is a Professor of Medicine (Neurology) at the University of Toronto. She is the Medical Director of the Epilepsy Program of University Health Network, University of Toronto, and the founder and Director of Krembil Neuroscience Adult Epilepsy Genetics Program, where she studies the causes and
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Board Chair – Linda Laux, MD – Ann & Robert H. Lurie Children’s Hospital Dr. Laux is an Attending Physician in the Neurology and Epilepsy Center of the Ann & Robert H. Lurie Children’s Hospital, as well as an Associate Professor of Pediatrics at Northwestern University Feinberg School of Medicine. She received her medical degree
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Morgan Turpin – California Morgan lives just north of San Diego with her husband Sean and their son and daughter. Their oldest, Shayne (now 11), was diagnosed with a mutation in the SCN1A gene when he was fourteen months old. It would take another ten months before he would officially receive a diagnosis of Dravet syndrome.
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Karen Masters Foster – California Karen lives in Northridge, CA with her husband Jermaine and their 4 children, Audrey, Miles, Clover, and Scarlet. Miles was 2 yrs old when genetic testing revealed he had an SCN1A mutation. Though initially diagnosed with GEFS+, at age 4 Miles was officially diagnosed with Dravet syndrome. From the beginning, Karen
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DSF is excited to be hosting its 2nd butterfly release, Wings of Hope, on June 25, 2022. This butterfly release will honor those living with Dravet syndrome, celebrate hope, and remember those who have passed. The release will take place on the last day of our 2022 Conference – June 25th – at The Worthington
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From 2010-2015, Ciara’s Butterfly Bash annual fundraising gala was named in honor of DSF Founder Lori O’Driscoll’s daughter. In January 2017, Ciara passed away from SUDEP (Sudden Unexplained Death in Epilepsy). Ciara’s courage and positive attitude in fighting Dravet syndrome made her a symbol of hope and inspiration to countless others. Her perseverance and strength
2022 Ciara’s Spirit of Hope Nominations are Open! Read More »
After having to postpone our scheduled conference in 2020, we are excited to be able to gather face-to-face again this June in Fort Worth, Texas. From June 23rd to 25th we have a full schedule that you won’t want to miss! Here are 5 reasons you will want to be there: Educational opportunities. Nothing compares
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Our Patient Assistance Grant (PAG) program has been a part of our advocacy efforts since our inception in 2009. While it cannot fulfill all of the financial needs within our community, we hope that it offers the opportunity for families to obtain some of the needed equipment for their child or adult living with Dravet
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Our annual Give Up Your Cup virtual fundraiser asks you to give up your coffee, tea or other “cup” for one day, one week, one month or anything in between, then donate what you would have spent to DSF. You can help to raise funds and spread awareness by setting up a personal fundraising page,
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