At its most fundamental level, the Clinical Trials Transformation Initiative (CTTI) is a group of individuals and organizations that want to improve the quality and efficiency of clinical trials. It was co-founded by Duke University and the U.S. Food and Drug Administration in 2007 in an effort to identify and address challenges to well-designed, properly […]
Clinical Trials Transformation Initiative Read More »
Together, the Dravet syndrome community managed to accomplish some pretty amazing things in 2022. The year started off with our virtual Externally-Led Patient-Focused Drug Development meeting on Dravet syndrome in February. This meeting was a long-awaited opportunity for the Dravet syndrome patient community to educate representatives of the Food and Drug Administration (FDA) and pharmaceutical
What We Accomplished Together in 2022 Read More »
The Center for Innovation & Value Research is an independent nonprofit research organization working to make sure that all patients have access to the right care at the right time. Their mission is to advance the science, practice, and use of patient-centered Health Technology Assessment to support decisions that make healthcare more meaningful and equitable.
Center for Innovation & Value Research Read More »
As we close out the year, we wanted to send our holiday wishes to our amazing community!
Happy Holidays from DSF! Read More »
What is on your agenda today? How about finding a cure for Dravet syndrome? At the Dravet Syndrome Foundation (DSF), that is on our agenda every single day. We invite you to donate again and be part of that effort to create a cure or therapy that enhances the quality of life for people with
2022 DSF Annual Campaign Read More »
We are grateful for our community this Thanksgiving. Our patient families, leaders, staff, clinicians, researchers, and industry partners make what we do every day possible. And for that, we are immensely thankful. For Our Board, Staff, and Volunteers: We are grateful to our many leaders who have shown up for our community – online and
With Gratitude this Thanksgiving Read More »
DSF is excited to announce our partnership with the Child Neurology Foundation and Unite Us, the nation’s leading technology company connecting health and social care services, to launch a new program that will connect families in the Dravet syndrome community to vital resources. Intended to fill a gap reported by families, this partnership is a
Unite Us – a New Program for Patient Families Read More »
Support DSF while you save! We’re excited to announce that we’re partnering with Minted.com this holiday season to help us fundraise. You can support the Dravet Syndrome Foundation by ordering your holiday cards and gifts from Minted.com using our promo code FUNDRAISEDRAVET. You’ll get 20% OFF your order and 15% of every purchase made using
Holiday FUNdraising to benefit DSF! Read More »
A signal of our organization’s growth and success is our need to add two new staff members to our team. We are excited to announce we are accepting applications for an administrative assistant and a fundraising assistant. Are you an administrative and/or fundraising professional with a passion for helping the Dravet syndrome community and making
National Epilepsy Awareness Month in November is an annual event that teaches people about epilepsy’s causes and symptoms. During this month, many organizations join together to provide information about prevention, treatment, research, and resources to fight epilepsy. DSF takes this opportunity each year to highlight Dravet syndrome and the complexities of this severe form of
Updated Professional Education Video Series Read More »
