By registering for a DSF Event or Activity, all participants, including speakers and attendees, agree to be photographed, filmed, recorded, or videotaped by a DSF representative and other business partners working with the Foundation. Participation in or attendance at this meeting constitutes the voluntary consent of the participant or attendee to: (a) be photographed, filmed, recorded, or videotaped by a DSF representative and other business partners working with the Foundation and (b) the reproduction, distribution, and use of all such photographs, digital images, films, voices, recordings, actions, names, and likenesses for any lawful purpose, including for use in publications, brochures, advertisements, promotional and marketing materials, and all other media venues including the World Wide Web, all without further notice or compensation to participant or attendee. I acknowledge that I may be photographed, filmed, or recorded during the meeting and that I have appropriate permission to share any information that I disclose during the meeting. I hereby release to DSF and other business partners working with DSF all proprietary rights and copyrights in all such photographs, digital images, voices, recordings, actions, films, and likenesses (including negatives, positives, and prints) which shall be and remain the property of the DSF and other business partners working with DSF. I understand that these materials may be used for print materials or for other related endeavors. These materials may also appear on the DSF, and other business partners working with DSF websites, and other public social media sites. I further represent and warrant that I have permission to display and distribute any content I include in my presentation (e.g., slides, videos, photos) and grant DSF and other business partners working with DSF a non-exclusive license to use, copy, redistribute, publish, and display the content for non-commercial purposes consistent with DSF’a mission. I expressly release DSF and other business partners working with DSF, its/their directors, officers, employees, agents, and volunteers from any and all claims, including copyright, right of publicity, and right of privacy, arising out of any reproduction, broadcast, distribution, publication, or promotion of this meeting or the materials described above. By registering and attending the Event or Activity, I consent to the Audio/Visual Waiver.


I, for myself, my family, successors, and assigns hereby forever release, waive, discharge, and covenant not to sue DSF, its board of directors, board members, officers, agents, servants, affiliates, employees, successors, and assigns (collectively the “Released Parties”) from any and all liability, claims, demands, actions, and causes of action whatsoever, directly or indirectly arising out of or related to any loss, damage, or injury, including death, that may be sustained by me related to participating in any activity associated with the Conference. INDEMNIFICATION: I agree to indemnify, defend, and hold harmless the Released Parties from and against any and all costs, expenses, damages, claims, lawsuits, judgments, losses, and/or liabilities (including attorney fees) arising either directly or indirectly from or related to any and all claims made by or against any of the Released Parties due to bodily injury, death, loss of use, monetary loss, or any other injury from or related to my attendance at Conference. By registering and attending the Conference, I consent to the Waiver of Lawsuit and Release of Liability.


Throughout our work, Dravet Syndrome Foundation (DSF) is part of, supports, and directly works with many different communities. Within those communities, DSF is committed to creating and maintaining an environment where everyone is welcomed, respected, and supported. We want our families, collaborators, staff, volunteers, grantees and partners to have an opportunity to participate and contribute, and to be valued for their skills, experience, and unique perspectives. The behaviors and practices in these guidelines reflect our organizational values as well as our Diversity, Equity and Inclusion (DEI) principles — including a commitment to fostering truly inclusive work. As such, we hold ourselves accountable to these Community Participation Guidelines and expect all those who participate in DSF events and activities to do the same – whether participating in an internal meeting, convening, workshop, online discussion, or other forum.

Our Behavior

  • Be Direct and Kind – We speak directly when we disagree and when we think we need to improve. We are kind in these interactions and communications. We aim to be direct, constructive and positive. One way to achieve being direct and kind is to assume good intent and listen actively before responding. We listen with our head and heart, and assure the head-heart connection before we speak.
  • Make Space – We value each other’s ideas, styles and viewpoints. We seek diverse perspectives. Diversity of views powers innovation. We are aware of how much time is taken up by dominant members of the group. If we find ourselves dominating a discussion, we recognize the need to step back and encourage other voices to join in. “Winning” is when different perspectives make our work richer and stronger.
  • Be Inclusive – our staff and community members come from many races, ethnicities, cultures and backgrounds. We are respectful of people with different cultural practices, attitudes, political affiliations and beliefs. We work to eliminate our own biases and prejudices. We think of others’ needs from their point of view. We create an environment where we can bring our whole self to our work – our professional self as well as much of our personal self as we each desire.
  • Take Responsibility & Stay Curious – We assume best intentions and take responsibility for our impact. We are aware of how intense interactions may affect other people. We do our best to stay curious and ask questions, and are open to the fact that we may not have all the information. If we have harmed someone through our words or actions, we listen carefully, apologize sincerely, and correct the behavior going forward.
  • Bring Solutions & Lead by Example – Our words and actions matter. By matching our actions with our words, we become examples others want to follow. When frustrations arise, we see it as our responsibility to be part of creating solutions. We design our community and our work for positive behavior and hold others accountable.

Behavior That Will Not Be Tolerated

  • Personal Attacks – Conflicts will inevitably arise, but frustration should never turn into a personal attack. It is not okay to insult, demean or belittle others. Attacking someone for their opinions, beliefs and ideas is not acceptable. This includes sustained “talking over” or “heckling” of speakers.
  • Derogatory Language – Hurtful or harmful language, or using vulgar, discriminating, intimidating, threatening or harassing language is not acceptable. Using derogatory language based on someone’s race, color, religion, national origin, age, sex, marital status, ancestry, physical or mental disability, veteran status, gender identity, sexual orientation, or any other protected class will not be tolerated. If you’re unsure if a word is derogatory, don’t use it.
  • Sexual Attention or Unwelcome Physical Contact – Sexual attention or unwelcome physical contact is not acceptable. This includes sexualized comments, jokes or imagery in interactions, communications or written materials, as well as inappropriate touching or sexual advances.
  • Breach of Confidentiality Obligations – Trust is at the core of our ability to collaborate and to advance our work. Improper access, use, disclosure, or sharing of confidential information will not be tolerated. If unsure, the expectation is that you ask before disclosing or using.
  • Violence or Threats of Violence – Violence and threats of violence are not acceptable – online or offline. This includes incitement of violence toward any individual, including encouraging a person to commit self-harm.
  • Intoxication – Drinking alcohol in excess or misuse of prescription drugs (or use of illegal drugs) while working or participating our events, or pushing others to do so, or making derogatory comments about those who abstain from alcohol or other substances is not acceptable.

Consequences of Unacceptable Behavior

Obviously, we can’t outline every positive or unacceptable behavior or action. Please use good judgment and be courteous and professional, even in stressful situations. Inappropriate behavior will not be tolerated and violation can result in you being asked to leave an event or online space, either temporarily or permanently, and it can result in you being banned from future events and activities. 

Reporting: Your notification of any concerns is essential to us. We cannot help resolve a problem unless we know about it. Therefore, please bring any concerns to our attention as soon as possible so that we can take whatever steps are necessary to address the situation.  

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