Privacy Statement (CA)

This privacy statement was last changed on February 16, 2024, last checked on February 16, 2024, and applies to citizens and legal permanent residents of Canada.

In this privacy statement, we explain what we do with the data we obtain about you via https://dravetfoundation.org. We recommend you carefully read this statement. In our processing we comply with the requirements of privacy legislation. That means, among other things, that:

• we clearly state the purposes for which we process personal data. We do this by means of this privacy statement;
• we aim to limit our collection of personal data to only the personal data required for legitimate purposes;
• we first request your explicit consent to process your personal data in cases requiring your consent;
• we take appropriate security measures to protect your personal data and also require this from parties that process personal data on our behalf;
• we respect your right to access your personal data or have it corrected or deleted, at your request.

If you have any questions, or want to know exactly what data we keep of you, please contact us.

1. Purpose and categories of data

We may collect or receive personal information for a number of purposes connected with our business operations which may include the following: (click to expand)

1.1 Contact - Through phone, mail, email and/or webforms

The following categories of data are collected

• A first and last name
• A home or other physical address, including street name and name of a city or town
• An email address
• A telephone number
• IP Address
• Internet activity information, including, but not limited to, browsing history, search history, and information regarding a consumer's interaction with an Internet Web site, application, or advertisement
• Geolocation data
• Date of birth
• Sex
• Photos
• Social Media accounts
• Financial information such as bank account number or credit card number
• Medical information

Retention period

Upon termination of the service we retain this data for the following period: 7 years.

1.2 Payments

The following categories of data are collected

• A first and last name
• A home or other physical address, including street name and name of a city or town
• An email address
• A telephone number
• IP Address
• Internet activity information, including, but not limited to, browsing history, search history, and information regarding a consumer's interaction with an Internet Web site, application, or advertisement
• Geolocation data
• Financial information such as bank account number or credit card number

Retention period

Upon termination of the service we retain this data for the following period: 7 years.

1.3 Registering an account

The following categories of data are collected

• A first and last name
• A home or other physical address, including street name and name of a city or town
• An email address
• IP Address
• Geolocation data
• Social Media accounts

Retention period

Upon termination of the service we retain this data for the following period: 7 years.

1.4 Newsletters

The following categories of data are collected

• A first and last name
• A home or other physical address, including street name and name of a city or town
• An email address
• IP Address
• Internet activity information, including, but not limited to, browsing history, search history, and information regarding a consumer's interaction with an Internet Web site, application, or advertisement
• Geolocation data
• Social Media accounts

Retention period

Upon termination of the service we retain this data for the following period: 7 years.

1.5 To support services or products that a customer wants to buy or has purchased

The following categories of data are collected

• A first and last name
• A home or other physical address, including street name and name of a city or town
• An email address
• A telephone number
• IP Address
• Internet activity information, including, but not limited to, browsing history, search history, and information regarding a consumer's interaction with an Internet Web site, application, or advertisement
• Geolocation data

Retention period

Upon termination of the service we retain this data for the following period: 7 years.

1.6 Compiling and analyzing statistics for website improvement.

The following categories of data are collected

• A first and last name
• A home or other physical address, including street name and name of a city or town
• An email address
• IP Address
• Internet activity information, including, but not limited to, browsing history, search history, and information regarding a consumer's interaction with an Internet Web site, application, or advertisement
• Geolocation data
• Social Media accounts

Retention period

Upon termination of the service we retain this data for the following period: 7 years.

2. Sharing with other parties

We only share or disclose this data to other recipients for the following purposes:

Purpose of the data transfer: For processing payments
Country or state in which this service provider is located: United States

3. Disclosure practices

We disclose personal information if we are required by law or by a court order, in response to a law enforcement agency, to the extent permitted under other provisions of law, to provide information, or for an investigation on a matter related to public safety.

If our website or organisation is taken over, sold, or involved in a merger or acquisition, your details may be disclosed to our advisers and any prospective purchasers and will be passed on to the new owners.

4. How we respond to Do Not Track signals & Global Privacy Control

Our website responds to and supports the Do Not Track (DNT) header request field. If you turn DNT on in your browser, those preferences are communicated to us in the HTTP request header, and we will not track your browsing behavior.

5. Cookies

Our website uses cookies. For more information about cookies, please refer to our Cookie Policy on our Cookie Policy (CA) webpage. 

We have concluded a data Processing Agreement with Google.

Google may not use the data for any other Google services.

The inclusion of full IP addresses is blocked by us.

6. Security

We are committed to the security of personal data. We take appropriate security measures to limit abuse of and unauthorized access to personal data. This ensures that only the necessary persons have access to your data, that access to the data is protected, and that our security measures are regularly reviewed.

The security measures we use consist of:

• Login Security

7. Third party websites

This privacy statement does not apply to third party websites connected by links on our website. We cannot guarantee that these third parties handle your personal data in a reliable or secure manner. We recommend you read the privacy statements of these websites prior to making use of these websites.

8. Amendments to this privacy statement

We reserve the right to make amendments to this privacy statement. It is recommended that you consult this privacy statement regularly in order to be aware of any changes. In addition, we will actively inform you wherever possible.

9. Accessing and modifying your data

If you have any questions or want to know which personal data we have about you, please contact us. Please make sure to always clearly state who you are, so that we can be certain that we do not modify or delete any data of the wrong person. We shall provide the requested information only upon receipt of a verifiable consumer request. You can contact us by using the information below.

9.1 You have the following rights with respect to your personal data

1. You may submit a request for access to the data we process about you.
2. You may request an overview, in a commonly used format, of the data we process about you.
3. You may request correction or deletion of the data if it is incorrect or not or no longer relevant. Where appropriate, the amended information shall be transmitted to third parties having access to the information in question.
4. You have the right to withdraw consent at any time, subject to legal or contractual restrictions and reasonable notice. You will be informed of the implications of such withdrawal.
5. You have the right to address a challenge concerning non-compliance with PIPEDA to our organization and, if the issue is not resolved, to the Office of the Privacy Commissioner of Canada.
6. We shall give access to personal information in an alternative format to an individual with a sensory disability who has a right of access to personal information under PIPEDA and who requests that it be transmitted in the alternative format if (a) a version of the information already exists in that format; or (b) its conversion into that format is reasonable and necessary in order for the individual to be able to exercise rights.

10. Children

Our website is not designed to attract children and it is not our intent to collect personal data from children under the age of consent in their country of residence. We therefore request that children under the age of consent do not submit any personal data to us.

11. Contact details

Dravet Syndrome Foundation
PO Box 3026, Cherry Hill, NJ 08034
United States
Website: https://dravetfoundation.org
Email: info@dravetfoundation.org
Toll free phone number: 203-392-1950
Phone number: 203-392-1950

12. Data Requests

For the most frequently submitted requests, we also offer you the possibility to use our data request form

Name

Name

Email

Submit a request for access to the data we process about you.

Submit a request for deletion of the data if it is no longer relevant.

Submit a request to receive an export file of the data we process about you.

We have appointed a contact person for the organization’s policies and practices and to whom complaints or inquiries can be forwarded:
Mary Anne Meskis
PO Box 3026, Cherry Hill, NJ 08034

Annex

WooCommerce

We collect information about you during the checkout process on our store.

What we collect and store

While you visit our site, we’ll track:

• Products you’ve viewed: we’ll use this to, for example, show you products you’ve recently viewed
• Location, IP address and browser type: we’ll use this for purposes like estimating taxes and shipping
• Shipping address: we’ll ask you to enter this so we can, for instance, estimate shipping before you place an order, and send you the order!

We’ll also use cookies to keep track of cart contents while you’re browsing our site. When you purchase from us, we’ll ask you to provide information including your name, billing address, shipping address, email address, phone number, credit card/payment details and optional account information like username and password. We’ll use this information for purposes, such as, to:

• Send you information about your account and order
• Respond to your requests, including refunds and complaints
• Process payments and prevent fraud
• Set up your account for our store
• Comply with any legal obligations we have, such as calculating taxes
• Improve our store offerings
• Send you marketing messages, if you choose to receive them

If you create an account, we will store your name, address, email and phone number, which will be used to populate the checkout for future orders. We generally store information about you for as long as we need the information for the purposes for which we collect and use it, and we are not legally required to continue to keep it. For example, we will store order information for XXX years for tax and accounting purposes. This includes your name, email address and billing and shipping addresses. We will also store comments or reviews, if you choose to leave them.

Who on our team has access

Members of our team have access to the information you provide us. For example, both Administrators and Shop Managers can access:

• Order information like what was purchased, when it was purchased and where it should be sent, and
• Customer information like your name, email address, and billing and shipping information.

Our team members have access to this information to help fulfill orders, process refunds and support you.

What we share with others

We share information with third parties who help us provide our orders and store services to you; for example -- Rallybound, Etapestry, Quickbooks, Greater Giving

Payments

We accept payments through PayPal, Stripe and Square. When processing payments, some of your data will be passed to PayPal, including information required to process or support the payment, such as the purchase total and billing information. Please see the PayPal Privacy Policy for more details.

Really Simple SSL

Really Simple SSL and Really Simple SSL add-ons do not process any personal identifiable information, so the GDPR does not apply to these plugins or usage of these plugins on your website. You can find our privacy policy here.

Stripe

By using this extension, you may be storing personal data or sharing data with an external service. Learn more about how this works, including what you may want to include in your privacy policy.