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Wings of Hope Butterfly Release
DSF is excited to be hosting its 2nd butterfly release, Wings of Hope, on June 25, 2022. This butterfly release will honor those living with ...
2022 Ciara’s Spirit of Hope Nominations are Open!
From 2010-2015, Ciara’s Butterfly Bash annual fundraising gala was named in honor of DSF Founder Lori O’Driscoll’s daughter. In January 2017, Ciara passed away from ...
Five Reasons to Attend the 2022 DSF Conference!
After having to postpone our scheduled conference in 2020, we are excited to be able to gather face-to-face again this June in Fort Worth, Texas. ...
Article Recap: Quality of Life in Genetic DEEs
In today’s blog we are recapping a recent publication by Cohen et al that reported the results of a study aimed at better understanding the ...
How to Read a Scientific Paper; Part 3: Critical Assessment
Today’s blog post was created in collaboration with Tanya Brown, PhD the Science Director for TESS Research Foundation and was cross-posted to the Science Simplified ...
Phase 3 Trials for Soticlestat Begin
What is soticlestat? Soticlestat is an investigational medication that is currently in Phase 3 trials for the treatment of seizures in Dravet syndrome (1). Soticlestat ...
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