DSF & Dravet Syndrome News
Keep up to date on current information in our Decoding Dravet Blog, our DSF Research Review and our monthly News & Notes.
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What to watch for from DSF in 2023
February 3, 2023
Annually, the DSF Board of Directors, with input from the staff, decides on priorities and objectives for the year ahead. These strategies are designed with ...
A diagnosis brought us together. Our hearts keep us together.
January 27, 2023
DSF will be hosting monthly online sessions to offer caregivers the opportunity to connect and engage with peers, to support one another, as well as ...
Use Your Connections to Help DSF!
January 20, 2023
Do you own a business or work for a national company that would benefit from national attention, while supporting the Dravet syndrome community? Corporate donations ...
Dads’ Meetup Registration
January 13, 2023
In a recent Decoding Dravet post, we took a moment to highlight fathers and father-figures in our community. During the Day of Dravet workshops, DSF ...
Join us in welcoming our new staff members!
January 6, 2023
DSF started as a small, volunteer-led group in 2009 and has grown into a professional organization that serves patient families, healthcare professionals, researchers, industry partners, ...
What We Accomplished Together in 2022
December 30, 2022
Together, the Dravet syndrome community managed to accomplish some pretty amazing things in 2022. The year started off with our virtual Externally-Led Patient-Focused Drug Development ...
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DSF’s News & Notes provide information on current research, our community, our programs, the grants we award, and upcoming fundraisers & special events. Sign up to receive our monthly updates in your inbox!