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Generating a shareable clinico-genomic data resource for Dravet syndrome
Ingo Helbig, MD – The Children’s Hospital of PhiladelphiaEthan M. Goldberg, MD, PhD – The Children’s Hospital of PhiladelphiaGenerating a shareable clinico-genomic data resource for ...
SCN1A Horizons – A natural history study of SCN1A-related epilepsies in the United Kingdom
Andreas Brunklaus, MD – University of Glasgow, Royal Hospital for Children, Glasgow, UKSCN1A Horizons – A natural history study of SCN1A-related epilepsies in the United KingdomGrant Support ...
2024 DSF Annual Campaign
As we approach the end of the year, we are proud to look back on our achievements. DSF started in 2009, when four parents came ...
What do DSF Family Network Ambassadors and Brand Ambassadors do?
Last week’s blog post was a brief overview about how the Family Network Ambassadors and the Brand Ambassadors function within our organization to help further ...
DSF Family Network and Brand Ambassadors
When you are going through something hard it’s always good to know that there are people “in the same boat” as you are. And while ...
DSF is designated an official “Give with Confidence” charity by Charity Navigator!
Have you heard the news? Dravet Syndrome Foundation (DSF) has earned a Four-Star rating by Charity Navigator, their highest possible rating. Their third-party accreditation validates ...
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