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15 Years of Connecting & Supporting Families

This year commemorates the 15th anniversary of DSF! We eagerly anticipate celebrating the initial 15 years of our impactful journey with you throughout 2024, sharing ...

Get your DSF t-shirt for Dravet Awareness Month!

In a world where thousands of causes are vying for attention and support, T-shirt fundraisers have emerged as a powerful tool in the realm of ...

Updates on STK-001: A Possible Disease-Modifying Therapy for Dravet Syndrome

There have been some exciting data releases from Stoke Therapeutics regarding their Phase 1/2a trial for the investigational therapy, STK-001, that suggest this could be ...

2023 Annual Report

I am proud to share our 2023 Annual Report that showcases the accomplishments of the year, made possible by the generosity of our donors. From ...

Making a Lasting Impact: The Power of Non-Cash Charitable Contributions for Dravet Syndrome

Dear Friends of Dravet Syndrome Foundation (DSF), In the journey of making a difference in the lives touched by Dravet syndrome, every contribution holds the ...

DSF Advocates for Rare Diseases in Washington, DC

Several DSF staff members from our Patient Advocacy Team went to Washington, DC last month to participate in Rare Disease Week on Capitol Hill. This ...
Berkley Dravet story

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