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2023 Annual Report
I am proud to share our 2023 Annual Report that showcases the accomplishments of the year, made possible by the generosity of our donors. From ...
Making a Lasting Impact: The Power of Non-Cash Charitable Contributions for Dravet Syndrome
Dear Friends of Dravet Syndrome Foundation (DSF), In the journey of making a difference in the lives touched by Dravet syndrome, every contribution holds the ...
DSF Advocates for Rare Diseases in Washington, DC
Several DSF staff members from our Patient Advocacy Team went to Washington, DC last month to participate in Rare Disease Week on Capitol Hill. This ...
10 Reasons to Attend the DSF Family & Professional Conference
I have attended two Dravet syndrome educational conferences – the first one was in 2010 in Connecticut, and the second one was DSF’s Family and ...
DSF Conference Scholarships
The 2024 DSF Family & Professional Conference will take place from June 20-22 at the JW Marriott Minneapolis Mall of America, just 2.5 miles from ...
New Genetic Therapy for Dravet Syndrome Advances Towards Clinical Trials
Given the limited effectiveness of current therapies to treat Dravet syndrome and the significant burden of symptoms, much hope lies in the potential of targeted ...
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