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Join DSF in Taking Steps Toward a Cure

Want to have fun while supporting DSF and raising awareness for Dravet syndrome? Join us at a Steps Toward a Cure event in your area! ...

DSF Partners with Mason’s Movement

We are pleased to announce a new partnership between DSF and the Mason’s Movement Foundation. Founded in 2020 by Amanda and Matt Langford in memory ...

DSF Galas & Evening Events this Fall!

It’s almost that time of year again. Time for leaves changing, cool breezes, pumpkin everything and you guessed it… DSF Gala and Benefit Evenings. STOP! ...

Reflecting on Advancements in Gene Therapy for Dravet Syndrome

Dravet syndrome is a severe form of epilepsy that is primarily caused by mutations in the SCN1A gene, which encodes a sodium channel critical for ...

Discontinuation of Studies and Manufacturing of Lorcaserin

Eisai recently communicated their decision to discontinue human trials and manufacturing of the experimental therapy, lorcaserin. The current Phase 3 trial has been discontinued and ...

New DSF Legislative Advocacy Program Kicks Off

As the Dravet syndrome patient community approaches the possibility of ASO and gene therapy advancements, DSF acknowledges the importance of proactive planning to ensure seamless ...
Berkley Dravet story

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