DSF & Dravet Syndrome News
Keep up to date on current information in our Decoding Dravet Blog, our DSF Research Review and our monthly News & Notes.
Stay up to date with our Research & Community News and our Decoding Dravet Blog
- Join our email list to receive research and community news at this link
- Copy this link to your RSS Feed for our blog updates (Click here to learn What is RSS?)
- All
- Community News & Programs
- Decoding Dravet Blog
- Research News
15 Years of Collaborative Partnerships
September 6, 2024
This year commemorates the 15th anniversary of DSF! We eagerly anticipate celebrating the initial 15 years of our impactful journey with you throughout 2024, sharing ...
Join DSF in Taking Steps Toward a Cure
August 30, 2024
Want to have fun while supporting DSF and raising awareness for Dravet syndrome? Join us at a Steps Toward a Cure event in your area! ...
DSF Partners with Mason’s Movement
August 23, 2024
We are pleased to announce a new partnership between DSF and the Mason’s Movement Foundation. Founded in 2020 by Amanda and Matt Langford in memory ...
DSF Galas & Evening Events this Fall!
August 16, 2024
It’s almost that time of year again. Time for leaves changing, cool breezes, pumpkin everything and you guessed it… DSF Gala and Benefit Evenings. STOP! ...
Reflecting on Advancements in Gene Therapy for Dravet Syndrome
August 9, 2024
Dravet syndrome is a severe form of epilepsy that is primarily caused by mutations in the SCN1A gene, which encodes a sodium channel critical for ...
Discontinuation of Studies and Manufacturing of Lorcaserin
August 2, 2024
Eisai recently communicated their decision to discontinue human trials and manufacturing of the experimental therapy, lorcaserin. The current Phase 3 trial has been discontinued and ...
Join Our Mailing List
DSF’s News & Notes provide information on current research, our community, our programs, the grants we award, and upcoming fundraisers & special events. Sign up to receive our monthly updates in your inbox!