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DSF Galas & Evening Events this Fall!
It’s almost that time of year again. Time for leaves changing, cool breezes, pumpkin everything and you guessed it… DSF Gala and Benefit Evenings. STOP! ...
Reflecting on Advancements in Gene Therapy for Dravet Syndrome
Dravet syndrome is a severe form of epilepsy that is primarily caused by mutations in the SCN1A gene, which encodes a sodium channel critical for ...
Discontinuation of Studies and Manufacturing of Lorcaserin
Eisai recently communicated their decision to discontinue human trials and manufacturing of the experimental therapy, lorcaserin. The current Phase 3 trial has been discontinued and ...
New DSF Legislative Advocacy Program Kicks Off
As the Dravet syndrome patient community approaches the possibility of ASO and gene therapy advancements, DSF acknowledges the importance of proactive planning to ensure seamless ...
Meet Our New DEI Coordinator, Gloria Rodriguez
I became involved with the Dravet Syndrome Foundation (DSF) to find a sense of control where there was none. Being active and trying to be ...
How is Cora doing? A mom’s musing on what that question is really asking.
“How is Cora doing?” is a typical question we get after our 4 year old daughter has had a seizure. It is a socially acceptable ...
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