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Why Our Family Will Dash for Dravet
While celebrating with friends and family last year on Christmas Eve, I received news that our daughter, Eden (10 year old Dravet warrior), would lose ...
Sharing Your Caregiver Story
DSF has recently launched a Caregiver Stories page on our website to assist families affected by Dravet syndrome in learning from one another’s experiences. By ...
DAF Day is October 10th!
We are proud to be participating in the first-ever DAF Day: a new day of giving designed to educate and inspire individuals to donate through ...
C.A.R.E. Binder – A Resource for Families Who are Caring for Adults with a Rare Epilepsy
Planning long-term care for a loved one with rare epilepsy or a developmental and epileptic encephalopathy (DEE), such as Dravet syndrome, can sometimes feel overwhelming. ...
Order your DSF 15th Anniversary T-Shirt!
Supporting any of DSF’s T-shirt fundraisers can be a powerful way to make a difference. Each year, we organize two fundraisers: one to engage the ...
Opportunities to Participate and Advance Research for Dravet Syndrome
Research advancements have led to improvements in clinical care and the development of novel treatments for Dravet syndrome (DS). Despite being rare, DS is one ...
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