DSF & Dravet Syndrome News
Keep up to date on current information in our Decoding Dravet Blog, our DSF Research Review and our monthly News & Notes.
Stay up to date with our Research & Community News and our Decoding Dravet Blog
- Join our email list to receive research and community news at this link
- Copy this link to your RSS Feed for our blog updates (Click here to learn What is RSS?)
- All
- Community News & Programs
- Decoding Dravet Blog
- Research News
C.A.R.E. Binder – A Resource for Families Who are Caring for Adults with a Rare Epilepsy
September 27, 2024
Planning long-term care for a loved one with rare epilepsy or a developmental and epileptic encephalopathy (DEE), such as Dravet syndrome, can sometimes feel overwhelming. ...
Order your DSF 15th Anniversary T-Shirt!
September 20, 2024
Supporting any of DSF’s T-shirt fundraisers can be a powerful way to make a difference. Each year, we organize two fundraisers: one to engage the ...
Opportunities to Participate and Advance Research for Dravet Syndrome
September 13, 2024
Research advancements have led to improvements in clinical care and the development of novel treatments for Dravet syndrome (DS). Despite being rare, DS is one ...
15 Years of Collaborative Partnerships
September 6, 2024
This year commemorates the 15th anniversary of DSF! We eagerly anticipate celebrating the initial 15 years of our impactful journey with you throughout 2024, sharing ...
Join DSF in Taking Steps Toward a Cure
August 30, 2024
Want to have fun while supporting DSF and raising awareness for Dravet syndrome? Join us at a Steps Toward a Cure event in your area! ...
DSF Partners with Mason’s Movement
August 23, 2024
We are pleased to announce a new partnership between DSF and the Mason’s Movement Foundation. Founded in 2020 by Amanda and Matt Langford in memory ...
Join Our Mailing List
DSF’s News & Notes provide information on current research, our community, our programs, the grants we award, and upcoming fundraisers & special events. Sign up to receive our monthly updates in your inbox!