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C.A.R.E. Binder – A Resource for Families Who are Caring for Adults with a Rare Epilepsy

Planning long-term care for a loved one with rare epilepsy or a developmental and epileptic encephalopathy (DEE), such as Dravet syndrome, can sometimes feel overwhelming. ...

Order your DSF 15th Anniversary T-Shirt!

Supporting any of DSF’s T-shirt fundraisers can be a powerful way to make a difference. Each year, we organize two fundraisers: one to engage the ...

Opportunities to Participate and Advance Research for Dravet Syndrome

Research advancements have led to improvements in clinical care and the development of novel treatments for Dravet syndrome (DS). Despite being rare, DS is one ...

15 Years of Collaborative Partnerships

This year commemorates the 15th anniversary of DSF! We eagerly anticipate celebrating the initial 15 years of our impactful journey with you throughout 2024, sharing ...

Join DSF in Taking Steps Toward a Cure

Want to have fun while supporting DSF and raising awareness for Dravet syndrome? Join us at a Steps Toward a Cure event in your area! ...

DSF Partners with Mason’s Movement

We are pleased to announce a new partnership between DSF and the Mason’s Movement Foundation. Founded in 2020 by Amanda and Matt Langford in memory ...
Berkley Dravet story

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