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2022 Day of Dravet Workshops - More Info Coming Soon!

DSF’s Day of Dravet Workshops are a time for patients and their families to come together to learn about research and treatment options, connect with one another, and be a part of a DSF’s shared vision for a better outcome for those affected by Dravet syndrome. These workshops typically take place in the fall, and include presentations on a variety of topics including:

Sessions for Families New to Diagnosis

These sessions will be helpful for families who are new to the diagnosis of Dravet syndrome. Learn about topics you have heard about and get accurate information to help you make confident and appropriate decisions on what will be helpful for your child’s care. Sessions are presented by community experts – including other parents.

Sessions for Families with Adult Patients

These sessions will be helpful for families who have a teen or adult patient with the diagnosis of Dravet syndrome. Learn about topics surrounding transition and future planning. Sessions are presented by community experts – including other parents. 

Resources from Past Day of Dravet Workshops

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