Dravet Syndrome Awareness Month

30 Days of Action!

This June – Help Us Turn Awareness Into Action!

Dravet Syndrome Awareness Month takes place each June in the U.S., and International Dravet Syndrome Awareness Day is observed on June 23rd. This year, we are recognizing those that we have lost on our 5th annual Remembrance Day – June 15, 2025.

By raising awareness of Dravet syndrome, our community can increase knowledge in the general public; improve early diagnosis; assure that patient families have the information they need to manage their loved one’s care; and reduce the feelings of isolation faced by patients and their families.

This year’s theme is Turning Awareness into Action!

2025 KEY DATES:

Beginning April 13, order your 2025 Dravet Syndrome Awareness month gear at this link: www.bonfire.com/dravetdefinition/.
June 1-30: Dye it for Dravet fundraising challenge kicks off
June 15: 5th Annual Dravet Remembrance Day
June 23: International Dravet Syndrome Awareness Day

Your support and hard work has been instrumental in the progress made for our patient community in the last decade. Now more than ever, we need your help! Please commit to raise public awareness of Dravet syndrome in one or more ways this June. #curedravet #advocatefordravet

How You Can Get Involved

Follow us on social media, and like and share our daily posts to help raise awareness! You can also customize our Dravet Facts to share or update your Facebook profile picture with the links (see below). Tag DSF and use the hashtag #curedravet

Join our June fundraiser and help us raise public awareness of Dravet syndrome. Set up a personal fundraising page or participate in Dye it for Dravet. Raise $500 or more and earn 50 Dravet Dollars for use in our online store. #curedravet

Our 4th annual Dravet Remembrance Day will take place on June 15th and will be a time for our community to reflect and remember those who we have lost to Dravet syndrome. Submit your loved one’s name here for inclusion on our virtual Remembrance Wall. #dravetremembranceday

On June 23rd, we are joining our advocacy partners and families from around the world in raising awareness of Dravet Syndrome Awareness Day. Consider sharing your story, contacting your legislator, or hosting an awareness event. #dravetawarenessday

To make your custom Facebook Profile Picture on Canva:

Click on this link.
Sign up for a free account on Canva
IMPORTANT: Click on “File”, then click on “Make a Copy”. This will preserve the file for others to use.
- To customize the template with your photo(s), click on “Uploads”, then click “Upload Files”.
- Upload a photo of your choice from the files on your computer or phone. An optimal photo size of 300×300 squares is recommended, but you’ll have the flexibility to adjust its placement.
Drag the photo onto the Facebook Profile template of your choice and insert the photo into the frame.
To download your customized graphic(s) click share, then download.
Upload your new profile picture to your Facebook account.
For questions or assistance, please contact us.