Patient Equity and Inclusion Committee

Lenny Lopez Leonardo (Lenny) was born in San Juan, Puerto Rico. He moved to Massachusetts as a young boy where he currently resides with his wife Amy and their two adopted children Becca and Isaias. At 16 months old Isaias was diagnosed with Dravet Syndrome after suffering from several different seizure types. Lenny has helped […]

Pablo Pluma Pablo was born in Greeley, Colorado, and raised in the nearby small town of Kersey. For the past 27 years, he has worked in manufacturing as a supervisor at Walker Mowers.He met his wife, Perla, when they were just 12 years old, and this July, they’ll celebrate 20 years of marriage. Together, they

Sirena Denbow Originally hailing from the beaches of Southern California, Sirena was transplanted to Washington State in 1986. After high school she earned her AA through Green River Community College and her bachelor’s degree from The Evergreen State College. She is currently finishing her final year of Washington State’s APR 6 law clerk program, with

Sasha Deen-Damodaran Sasha was born in The Bronx, NY, moved to Queens and eventually landed in Round Rock, TX where she has called home for the past 19 years. She graduated from Martin Van Buren High School and went on to earn her Bachelor’s degree in Anthropology from Queens College. After moving to Texas, she

Melissa O’Bryan Melissa is the proud mom to four boys. Her and her husband, Jim make their home in Ketchikan, Alaska, a small island on the SE tip. Her son, Owen, was diagnosed with Dravet syndrome at three years of age. She credits awareness and research for her son’s early diagnosis. Her passion for advocacy