DSF Staff

As the Family Network Liaison, Erin oversees volunteers in both the Parent Ambassador and Social Media Ambassador programs. Erin and her husband Leo live outside of Seattle, WA, and are parents to Eloise and Leonel. Erin began fundraising for DSF soon after her Leonel’s Dravet syndrome diagnosis in 2016. She has been a volunteer Parent Ambassador […]

Misty resides in South Carolina, with her husband Ben and their two children, Braxton and Allie. In 2009 her son, Braxton, was diagnosed with Dravet syndrome at just 15 months old. With very little information given to them by their neurologist, they immediately went online in search of other parents to help educate and guide

Veronica joined DSF in 2020. She has an MS in Biology from East Tennessee State University and a PhD in Cell, Stem Cell, and Developmental Biology from the University of Colorado. She spent 10 years in laboratory settings researching how small changes in genetic and molecular regulation contribute to complex neurological diseases. In 2007, Veronica

Mary Anne was a founding member of the Dravet Syndrome Foundation (DSF) in 2009 and has served as the Executive Director since 2012. Before shifting her focus towards advocacy, she owned and managed several businesses in the private sector for over 25 years, with an emphasis on project management. Her professional background, combined with her