Decoding Dravet Blog

Helping you to learn about the past, present, and future of Dravet syndrome and the Dravet Syndrome Foundation. The Decoding Dravet Blog will keep you up to date on current research, treatment options, advocacy efforts, community activities, and other topics that are important to the Dravet syndrome community.

surgery, hospital, medical professionals

Is epilepsy surgery for seizure control an option for individuals with Dravet syndrome?

DSF has received many questions about epilepsy surgery for patients with Dravet syndrome recently. If this is something you are considering for your child, it is crucial to know your options and to learn more about what we currently know regarding surgery for patients with Dravet syndrome. It is important to remember that every patient’s […]

Is epilepsy surgery for seizure control an option for individuals with Dravet syndrome? Read More »

Miles for Mccall community spotlight

Miles for McCall

We are excited to announce a new multi-year fundraising and awareness event – Miles for McCall! Dan Hartley is a 49-year-old, US Navy Veteran and business owner, who is a former semi-professional ultra-runner who has competed in numerous ultramarathons and 100-mile races. Having converted to competitive ultra-cycling in 2020, Dan has a full schedule of

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Dravet syndrome UK logo DSUK covid-19 survey

Guest Blog: Results from DSUK survey on the patient experience with COVID-19 vaccinations provides reassurance

Our caregiver community has been anxious to learn about the experiences of patients with Dravet syndrome who have received the COVID-19 vaccination. Our friends at Dravet Syndrome UK (DSUK) recently surveyed their community to gather information on the patient experience after vaccination. They have been kind enough to share this with us in the guest

Guest Blog: Results from DSUK survey on the patient experience with COVID-19 vaccinations provides reassurance Read More »

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