Media Submissions

If you are interested in sharing your child’s photo(s), video(s), and/or story with us, please complete the form below.

To help spread awareness of Dravet syndrome it is important for DSF to share the patient story through a variety of methods. This includes bringing a face to the disease through photos and videos on our website, social media, brochures and other promotional materials. If you are interested in sharing your child’s photo(s), video(s), and/or story with us, please complete the form below. Any questions on photo and video usage may be directed to patientstories@dravetfoundation.org.

To submit photos or video clips for use on our website, brochures, social media, and/or other promotional materials, please complete the submission form below and upload your hi-res photo files (in jpg or png format) or video clips (not to exceed 2MB). You can also email your photos and videos to patientstories@dravetfoundation.org. You can see examples of Dravet Stories on our website here.

Photo/Media Release

Questions on whether your photos are hi-res? Please read our guidelines at this link.

Your Name(Required)

First Last

Email(Required)

Child's Name(Required)

Photos & Video Clips

Please upload photos in jpg or png format. Video clips should not exceed 2MB. Please try to include your child's last name as part of the file name (i.e., smith_photo_1.jpeg)

Drop files here or

Max. file size: 128 MB.

Tell us about yourself and the Dravet patient in your life

Examples: tell us about your family, where you live, what you like to do, what brings you joy, etc.

When did the patient's seizures begin?

What were the early days of the disease like for the patient and family? What led to a diagnosis?

What is your hope for the future your loved one? For the Dravet community?

What advice do you have for newly diagnosed Dravet families?

Were you the recipient of a Patient Assistance Grant?

If so, please share how this grant has helped the Dravet patient in your life.

Signature(Required)

I hereby grant permission to Dravet Syndrome Foundation (DSF) and its agents or employees to use my child’s photo(s) and/or video(s) which I have submitted for publication in brochures, newsletters, display boards, social media accounts, and websites without notifying me. I also acknowledge that DSF may choose not to use my photo(s) at this time, but may do so at its own discretion at a later date. I understand that once my image is posted on the DSF website, the image can be downloaded by any computer user. Therefore, I agree to indemnify and hold harmless DSF, its agents, volunteers, and employees from any claims. I agree to waive and release any and all claims against DSF and its contractors and licensees relating to my name, my likeness, the photo(s) and their uses and/or distribution in any version or media throughout the universe, including without limitation, any rights and claims relating to royalties or compensation, editing, alteration, copyright, distribution, misappropriation, libel, false light, rights of privacy and/or publicity. DSF reserves the right to discontinue use of photos without notice. To request that your child’s photo(s) be removed from the website and/or other materials, please submit a written request by email to info@dravetfoundation.org I have read this release before signing below and I fully understand the contents, meaning, and impact of this release.

The information collected by Dravet Syndrome The information collected by Dravet Syndrome Foundation will not be sold or distributed outside of DSF and is used solely to verify identity and assist with communication. Questions or concerns can be directed to our team.