Veronica Hood, PhD

It is a continuing trend that research related to Dravet syndrome (DS) has robust representation at the annual American Epilepsy Society (AES) Meeting. DS came up across sessions large and small throughout the meeting, highlighting examples of the advancements in diagnosis, treatment algorithms, preclinical modeling, and novel genetic therapies that are occurring for DS. Notably, […]

Last week, I had the opportunity to attend the 2023 Park City Epilepsy Meeting and an open house for the NIH/NINDS Epilepsy Therapy Screening Program (ETSP) contract site at the University of Utah. DSF was proud to sponsor the Park City Epilepsy Meeting this year, which focused on cutting-edge approaches to transform epilepsy therapies. Take-aways

Today’s blog will mostly focus on SUDEP, or Sudden Unexpected Death in EPilepsy. This topic is hard to talk about, but in the rare epilepsy community, these hard conversations represent realities we are faced with almost daily. Just last month we recognized June 15th as Dravet Remembrance Day as part of Awareness Month; a day

In 2020 the COVID-19 pandemic completely disrupted the lives and health of the United States and the world. The development of vaccinations against COVID-19 were prioritized, and many people came together to create and test those vaccination options in an attempt to slow the pandemic and prevent more loss of life. Three years later In