This year commemorates the 15th anniversary of DSF! We eagerly anticipate celebrating the initial 15 years of our impactful journey with you throughout 2024, sharing the highlights of what our community has accomplished through DSF: 15 years of funding groundbreaking research. 15 years of connecting and supporting families. 15 years of raising awareness of Dravet […]
Celebrating 15 Years! Read More »
It all started in 2009, when four parents came together looking for connection with one another and a desire to improve outcomes for their own children who had been diagnosed with Dravet syndrome (DS). Since then, there have been many exciting advancements in the field of DS, many thanks in part to DSF. We have
DSF 5-year Strategic Plan Read More »
Dravet Syndrome Foundation (DSF) is excited to announce the promotion of Meredith Bankston to Event Coordinator. Meredith joined the organization in 2022 and has demonstrated dedication and skill in her previous role as Fundraising Assistant, leading to her advancement within the organization. In her new position, Meredith will play a crucial role in overseeing and
Meredith Bankston Promoted to Event Coordinator Read More »
This has been an exciting year for the field of Dravet syndrome and DSF. The success of DSF and our many accomplishments is all due to our engaged patient community and loyal supporters. As a result of that support, in 2023, DSF had many exciting highlights: We awarded 8 research grants, totally $2.475M, including an
Community. Research. Progress. Updates from 2023! Read More »
This holiday season, we want to say thank you. Your support has made a significant impact on our organization and community, and we are truly grateful. Wishing you a happy, healthy, and peaceful holiday season!
Holiday Wishes from DSF Read More »
A major challenge in the management of many epilepsies, including Dravet syndrome (DS), is the prolonged trial and error approach of determining whether or not a specific antiseizure medication (ASM) will work for a given patient. Testing an add-on therapy can take many months before it is determined to be ineffective, and for some it
The NFL’s “My Cause, My Cleats” campaign is a fundraiser that allows players and staff to express their commitment to the causes that are most important to them, and wear their hearts on their feet. We are honored that Charles Byrd, an assistant NFL strength and conditioning coach for the New Orleans Saints, rocked a pair of
Myla-Rose and “My Cause, My Cleats” Read More »
As we approach the end of the year, we are proud to look back on our achievements. DSF started in 2009, when four parents came together looking for connection with one another and a desire to improve outcomes for their own children who had been diagnosed with Dravet syndrome. Now, 14 years later, the success
2024 DSF Annual Campaign Read More »
Cheyenne Wolf brings a deep commitment to nonprofit development and donor engagement to her role as Development Coordinator at Dravet Syndrome Foundation (DSF). A Central New Jersey native, she has dedicated her career to advancing mission-driven organizations through strategic fundraising and relationship-building. Cheyenne’s academic journey began with a merit-based NJ STARS scholarship, allowing her to
Cheyenne Wolf – Development Coordinator Read More »
Have you heard the news? Dravet Syndrome Foundation (DSF) has earned a Four-Star rating by Charity Navigator, their highest possible rating. Their third-party accreditation validates our organization’s operational excellence and our rating reflects our strong financial health and ongoing accountability and financial transparency. And, this rating designates DSF as an official “Give with Confidence” charity!
DSF is designated an official “Give with Confidence” charity by Charity Navigator! Read More »
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