We are pleased to share that on February 3, 2026, Congress passed, and the President signed, a spending package for federal Fiscal Year (FY) 2026. The package includes funding for the Departments of Defense and Health and Human Services, including: $11.5 million for the Centers for Disease Control and Prevention (CDC)’s Epilepsy Program (level […]
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Congress is beginning to make decisions about how much funding each program will get next year, and programs that support and protect people with disabilities are at serious risk. The President’s budget proposal is the starting point of this annual process. It recommends that Congress make cuts to programs that millions of people with disabilities
Protect Disability Services Read More »
Haz clic en este enlace para abrir la plantilla de perfil. Nota: Si no tienes una cuenta de Canva, deberás crear una cuenta gratuita aquí para continuar. Seleccione “Usar plantilla para nuevo diseño” Selecciona “Cargas” en el lado izquierdo y “cargar archivo” o arrastra y suelta la imagen que quieres que sea tu foto
Crea una foto de perfil personalizada para redes sociales Read More »
Each year, Dravet Syndrome Awareness Month – observed from June 1 to 30 in the U.S. – provides a crucial opportunity to highlight the often-overlooked challenges and unmet needs of those living with Dravet syndrome. It is a meaningful time for the Dravet community to raise visibility, share stories, and ensure that the voices of
Turn Awareness into Action this June! Read More »
At DSF, we are guided by a commitment to transparency, accountability, and connection to our community. Each year, our annual report is more than just a summary of numbers – it’s a story of the lives we’ve touched, the progress we’ve made, and the vision that continues to guide our mission. Our 2024 Annual Report
See the Difference You Made – 2024 DSF Annual Report Now Available! Read More »
TOOLS TO SUPPORT YOUR AWARENESS EFFORTS: 30 Days of Advocacy Calendar Downloadable Dravet Facts graphics Turning Awareness Into Action: Tips for Advocating Six ways to #AdvocateforDravet graphic Protect essential programs funding graphic Example emails to legislators “I Advocate for Dravet” customizable template “My Dravet Warrior Is” customizable template “Three Things I Wish You Knew” template
2025 DRAVET SYNDROME AWARENESS MONTH TOOLKIT Read More »
Click this link to open the profile template. Note: If you do not have a Canva account, you will need to create a free account here to continue. Select “Use template for new design” Select “Uploads” on the left-hand side and “upload file” or drag and drop the image you’d like to make your profile
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DSF is proud to announce that it has once again received the Platinum Seal of Transparency from Candid, the highest level of recognition offered by the nonprofit information platform formerly known as GuideStar. This prestigious designation underscores DSF’s ongoing commitment to transparency, accountability, and trustworthiness. Candid’s Seals of Transparency – Bronze, Silver, Gold, and Platinum
DSF Receives Platinum Nonprofit Seal of Excellence Read More »
Caring for a loved one with Dravet syndrome can lead to significant medical expenses. We understand that the need for support can arise at various stages, and we’re here to help when it does. The DSF Patient Assistance Grant (PAG) Program is designed to help by providing financial aid for essential medical equipment, ensuring patients
Helping Families Manage the Cost of Care Read More »
Sarah joined the DSF staff in 2025 but has been involved with the organization as a supporter since around 2015 after she learned that her daughter’s best friend had an SCN1A related seizure disorder. She has her undergraduate degree in Theatre and her Masters of Science in elementary and special education. Sarah lives in New
Sarah Pasternak – Database Coordinator Read More »
