We are pleased to announce a new partnership between DSF and the Mason’s Movement Foundation. Founded in 2020 by Amanda and Matt Langford in memory of their son Mason, who had Dravet syndrome and tragically passed away from SUDEP, Mason’s Movement Foundation is dedicated to supporting bereaved families. One of their initiatives, The Good Mourning […]
DSF Partners with Mason’s Movement Read More »
This year, DSF has the opportunity to sponsor a family (up to 4 people) to attend this incredible event, thanks to a sponsorship from Sofie’s Journey. What does the sponsorship cover? The sponsorship covers ground transportation, flights, hotel accommodations, stipend for meals and tickets to Disneyland for Wednesday, November 20, 2024 for a family of
Epilepsy Awareness Day at Disneyland – November 2024 Scholarship Award Read More »
As the Dravet syndrome patient community approaches the possibility of ASO and gene therapy advancements, DSF acknowledges the importance of proactive planning to ensure seamless patient access and insurance coverage when these treatments become available. This year, we launched our latest initiative, our Legislative Advocacy Program, aimed at ensuring that the concerns of our community
New DSF Legislative Advocacy Program Kicks Off Read More »
Whether you opt to organize a gala, arrange a fundraising walk, initiate a social media fundraiser, or engage in a virtual event, you play a crucial role in transforming the landscape of Dravet syndrome. Our team is committed to assisting you throughout your fundraising journey, recognizing that your efforts are vital in sustaining our vibrant
Fundraising Handbooks Read More »
At this year’s conference, we honored five individuals whose dedication and active participation in our mission are helping to drive advancements in the field of Dravet syndrome. Continue reading to discover more about this year’s recipients and the impact they are making for the Dravet syndrome community. Impact & Legacy Award – Theron (Ted) Odlaug,
2024 DSF Community Awards Read More »
Dravet Syndrome Awareness Month takes place each June in the U.S., and International Dravet Syndrome Awareness Day is observed on June 23rd. This year, we are once again recognizing those that we have lost on our 4th annual Remembrance Day on June 15, 2024. Dravet Remembrance Day is a time for our community to reflect
Remembrance Day – June 15th Read More »
This year commemorates the 15th anniversary of DSF! We eagerly anticipate celebrating the initial 15 years of our impactful journey with you throughout 2024, sharing the highlights of what our community has accomplished through DSF: 15 years of funding groundbreaking research. 15 years of connecting and supporting families. 15 years of raising awareness of Dravet
15 Years of Raising Awareness of Dravet Syndrome Read More »
This June, take action. Do your part (big or small) to give the Dravet syndrome community the recognition it deserves during Dravet Syndrome Awareness Month. Like & Share our Posts: Get connected with us on our social media channels so you can like and share our posts throughout June. Spread Awareness on Social Media: This
Dravet Syndrome Awareness Month 2024 Read More »
A proclamation is an official designation of an event and can be a great way to educate the public about a specific issue or bring attention to a cause. A proclamation is an effective tool for gaining public recognition of your event because it carries the full support of a key government official in your
Proclamation Request Example Read More »
DSF hosts monthly online sessions to offer caregivers the opportunity to connect and engage with peers, to support one another, as well as to ask questions of DSF and its staff. We know that exposure to stories, insights, and information sharing is particularly helpful when you are caring for someone with Dravet syndrome. Chat &
This website is made possible through educational grants from our partners. Partners did not have a role in developing content. The information you obtain at this site is not intended to be medical advice, please read our medical disclaimer. Thank you to:
This website is neither intended nor designed to record or report safety information related to any product or device. If you have experienced an adverse event (side effect) or product quality complaint with any product or device, please contact your doctor and contact the manufacturer directly.
© Copyright 2025 | Dravet Syndrome Foundation | All Rights Reserved
