Ingrid Scheffer, AO MB BS PhD FRACP FAHMS FAA University of Melbourne Laureate Professor Ingrid Scheffer’s work has resulted in a major paradigm shift in our understanding of the epilepsies, highlighting the importance of genetic causes. Her work on epilepsy syndromes and classification over thirty years has framed clinical practice. Her collaborative group discovered the […]
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M. Scott Perry, MD – Cook Children’s Medical Center Dr. Perry is the Head of Neurosciences and Director of the Jane and John Justin Institute for Mind Health at Cook Children’s Medical Center, Fort Worth, TX where he also is director of the Genetic Epilepsy Clinic. He also serves as the Vice President of Faculty
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Sookyong Koh, MD, PhD – University of Nebraska Dr. Koh is the chief of the UNMC Division of Pediatric Neurology. Dr. Koh is board certified in neurology with a special qualification in child neurology, clinical neurophysiology and epilepsy. Dr. Koh earned her MD and PhD in neurobiology from the University of Rochester in New York.
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Kelly Knupp, MD, MSCS – Children’s Hospital Colorado Kelly Knupp is a Professor of Pediatrics and Neurology at the University of Colorado. She received her medical degree from the University of New Mexico – School of Medicine, completed her residency in Pediatrics at Children’s Hospital of New York followed by Pediatric Neurology Residency at Columbia
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Danielle Andrade, MD, MSc, FRCPC – University of Toronto Dr. Andrade is a Professor of Medicine (Neurology) at the University of Toronto. She is the Medical Director of the Epilepsy Program of University Health Network, University of Toronto, and the founder and Director of Krembil Neuroscience Adult Epilepsy Genetics Program, where she studies the causes and
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Board Chair – Linda Laux, MD – Ann & Robert H. Lurie Children’s Hospital Dr. Laux is an Attending Physician in the Neurology and Epilepsy Center of the Ann & Robert H. Lurie Children’s Hospital, as well as an Associate Professor of Pediatrics at Northwestern University Feinberg School of Medicine. She received her medical degree
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Morgan Turpin – California Morgan lives just north of San Diego with her husband Sean and their son and daughter. Their oldest, Shayne (now 11), was diagnosed with a mutation in the SCN1A gene when he was fourteen months old. It would take another ten months before he would officially receive a diagnosis of Dravet syndrome.
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Karen Masters Foster – California Karen lives in Northridge, CA with her husband Jermaine and their 4 children, Audrey, Miles, Clover, and Scarlet. Miles was 2 yrs old when genetic testing revealed he had an SCN1A mutation. Though initially diagnosed with GEFS+, at age 4 Miles was officially diagnosed with Dravet syndrome. From the beginning, Karen
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DSF is excited to be hosting its 2nd butterfly release, Wings of Hope, on June 25, 2022. This butterfly release will honor those living with Dravet syndrome, celebrate hope, and remember those who have passed. The release will take place on the last day of our 2022 Conference – June 25th – at The Worthington
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From 2010-2015, Ciara’s Butterfly Bash annual fundraising gala was named in honor of DSF Founder Lori O’Driscoll’s daughter. In January 2017, Ciara passed away from SUDEP (Sudden Unexplained Death in Epilepsy). Ciara’s courage and positive attitude in fighting Dravet syndrome made her a symbol of hope and inspiration to countless others. Her perseverance and strength
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