Dravet Syndrome and Social Security Session: Presentation Outline Compassionate Allowance Information Listing 11.02 for Adults Listing 111.02 for Children How Social Security Evaluates Epilepsy under Listing 111.02 Helpful tips for Lay & Medical Statements Teacher Questionnaire Seizure Monitoring Devices Session: Presentation Slides
2021 Day of Dravet Materials Read More »
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Table Assignment by Guest Name Read More »
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Table Assignment by Sponsor Read More »
We are excited to be hosting our first in-person event since the start of the pandemic! The Brennan Family will host their third annual Dance for Dravet, on Friday October 22, at the Third Degree Glass Factory in St Louis, Missouri. The event is held in honor of their 4-year-old family member Anna Odlaug, who
2021 Dance for Dravet Read More »
A strategic plan for a nonprofit acts as a blueprint to focus on what direction the organization will move in. It brings together the organization’s mission and strategy to help its constituents better understand what its priorities are and how they will be achieved. It also allows the organization the opportunity to evaluate its progress,
Strategic Plan Progress Report – Year 3 Read More »
Training Photos 24 Hour World Time Trial Championship – Oct 2021
Training & Event Photos Read More »
When a family first receives a diagnosis of Dravet syndrome for their child, they may feel overwhelmed and unsure where to begin. Often your first instinct is to turn to the internet for more information. But with a rare disease such as Dravet syndrome, general information you may find can be out of date, based
Newly Diagnosed Patient Kits Read More »
The Seizure Action Plan Coalition is excited to announce our 2021 Back to School initiatives: In 2020, the Seizure Action Plan (SAP) Coalition was formed by the Dravet Syndrome Foundation, the LGS Foundation, and the TSC Alliance to fill an unmet need in the epilepsy community. This collaborative effort is designed to raise awareness of what
Be Seizure Ready for Back to School! Read More »
We are excited to announce a new multi-year fundraising and awareness event – Miles for McCall! Dan Hartley is a 49-year-old, US Navy Veteran and business owner, who is a former semi-professional ultra-runner who has competed in numerous ultramarathons and 100-mile races. Having converted to competitive ultra-cycling in 2020, Dan has a full schedule of
#MilesforMcCall #RaceAcrossAmerica #CyclingforaCure #RideforResearchDravet #RidesforResearch
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