The Seizure Action Plan Coalition is excited to announce our 2021 Back to School initiatives: In 2020, the Seizure Action Plan (SAP) Coalition was formed by the Dravet Syndrome Foundation, the LGS Foundation, and the TSC Alliance to fill an unmet need in the epilepsy community. This collaborative effort is designed to raise awareness of what […]
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We are excited to announce a new multi-year fundraising and awareness event – Miles for McCall! Dan Hartley is a 49-year-old, US Navy Veteran and business owner, who is a former semi-professional ultra-runner who has competed in numerous ultramarathons and 100-mile races. Having converted to competitive ultra-cycling in 2020, Dan has a full schedule of
#MilesforMcCall #RaceAcrossAmerica #CyclingforaCure #RideforResearchDravet #RidesforResearch
Learn more about the 24 Hour World Time Trial Championship WTTC Fun Facts: Borrego Springs, CA – Located in Southern California Anza-Borrego Desert 60 metal sculptures by Ricardo Brecada 6, 12 & 24 Hour Race (Dan will be racing for 24) 95 Participants in 24 Hour Solo Race (77 Men & 18 Women representing 14
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I am the mother of 28 year-old Brian. We live in Knoxville, TN. I was a college French professor at Carson-Newman University, until I had to quit in 2000 because of Brian’s seizures and me being an hour away. My husband Tom was a research physicist at Oak Ridge National Lab. His research took a
Your commitment and engagement as part of the DSF community has been instrumental in the progress that has been made for patients and families living with Dravet syndrome in the last decade. Now more than ever, we need your help! Dravet Syndrome Awareness Month takes place each June in the U.S. This is our annual
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This year, we are encouraging our families and supporters to help us Fight Dravet by participating in a virtual fundraising event through June 30th You can participate in our Join the Fight Challenge by registering for free at www.fightdravet.org. When you set up your personal campaign page, be sure to tell your story about your
Join the Fight Challenge! Read More »
Our family moved to Houston, Texas to get better medical care when we found out our sweet Andie was diagnosed with Dravet Syndrome. We have a great familial support system here and feel so blessed to be surrounded with so much family. Our family loves everything outdoors. We love discovering new places together through hiking,
My second son has Dravet syndrome. He is 27 years old. We live in Japan. A local nonprofit, Pokkapoka Runners, matches participant runners with disabled individuals. Participants deepen their interactions with disabled people through training sessions, practice sessions, etc. Thanks to this activity, my second son is able to run. When did Kiyonori’s seizures begin?
Hi my name is Ericka I am 26 years old and was blessed with my precious Royall on August 18. My son was diagnosed with Dravet syndrome in December, it has been a rough road expecially when you have no knowledge of it, but I am a women of strong faith and I highly believe
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