What is Dravet Syndrome?
Dravet syndrome, also known as Severe Myoclonic Epilepsy of Infancy (SMEI), is a rare form of intractable epilepsy that begins in infancy and proceeds with accumulating morbidity that significantly impacts individuals throughout their lifetime. It has an estimated incidence rate of 1:15,700. [1]
Community. Research. Progress.
Raising Hope & Changing Lives through Research
The mission of Dravet Syndrome Foundation (DSF) is to aggressively raise funds for Dravet syndrome and related epilepsies; to support and fund research; increase awareness; and to provide support to affected individuals and families.
We know that the fight against Dravet syndrome will never be successful without teamwork. None of us can do this alone and to achieve great things we must work together. Thanks to our community’s combined efforts, DSF has many accomplishments to be proud of. Join #TeamDSF by making a donation, starting a personal fundraising campaign, or setting up a social media fundraiser this year.
We're Here To Help You
We offer a wide variety of resources for caregivers and medical professionals
DSF offers many resources for parents and caregivers including brochures, educational webinars, a biennial conference and videos. We also offer support groups and programs for families and siblings and patient and caregiver connect grants.
DSF is dedicated to funding the highest caliber research on Dravet syndrome and associated epilepsies. Our focus is on research projects that will find new treatments and improve the quality of life for those living with an ion channel epilepsy.
DSF offers many resources and educational materials for neurologists serving our Dravet community including a biennial conference, diagnostic considerations, information on new FDA-approved medications, and seizure rescue action plans.
DSF Recent News & Information
Keep up to date on current information in our Decoding Dravet Blog, our DSF Research Review on our news page
Dye it for Dravet is back!
Last year for Dravet Syndrome Awareness Month, we debuted Dye it for Dravet, after DSF Parent Ambassador Jen Kuhn and her hair stylist, Kelsi Morgan …
June is Dravet Syndrome Awareness Month!
June is Dravet Syndrome Awareness Month in the U.S. By raising awareness of Dravet syndrome, our community can increase knowledge in the general public; improve …
Day of Dravet Workshops
Day of Dravet Workshops are a time for patients and their families to come together to learn about research and treatment options, connect with one …
Upcoming Events
Want to get involved? Join an Event? Host an Event? There are so many ways you can support DSF! View all of our upcoming events here
