What is Dravet Syndrome?
Dravet syndrome, also known as Severe Myoclonic Epilepsy of Infancy (SMEI), is a rare form of intractable epilepsy that begins in infancy and proceeds with accumulating morbidity that significantly impacts individuals throughout their lifetime. It has an estimated incidence rate of 1:15,700. [1]
Community. Research. Progress.
Raising Hope & Changing Lives through Research
The mission of Dravet Syndrome Foundation (DSF) is to aggressively raise funds for Dravet syndrome and related epilepsies; to support and fund research; increase awareness; and to provide support to affected individuals and families.
We know that the fight against Dravet syndrome will never be successful without teamwork. None of us can do this alone and to achieve great things we must work together.
Thanks to the collective efforts of our community, DSF has achieved numerous milestones to celebrate. Become a part of #TeamDSF by donating, launching a personal fundraising campaign, or exploring other ways to give.
DSF Recent News & Information
Keep up to date on current information that is important to you in our weekly Decoding Dravet Blog posts and through our email updates.
Meet our 2025 TCS New York City Marathon Runners!
DSF-Funded Study Aims to Change the “Trial-and-Error” Approach to Treatment for Dravet Syndrome
Longitudinal Insights: Gathering Natural History Data for Dravet Syndrome
Upcoming Events
Want to get involved? Join an Event? Host an Event? There are so many ways you can support DSF! View all of our upcoming events here
