2023 Day of Dravet: West – Agenda

Time Session Speaker
10:00am-10:30am Registration & Breakfast
10:30am-10:35am Welcome Erin Reoyo - DSF Family Network Liaison
10:35am-11:20am Overview of Dravet Syndrome Veronica Hood, PhD - DSF Scientific Director
11:20am-11:45pm Family Introductions
11:45am-12:15pm Valtoco to the Rescue Nancy Santilli, NP
12:15pm-12:30pm Sibling Camp Update Laurie Bailey, UCB
12:30pm-1:30pm Lunch (Siblings will be eating offsite)
1:30pm-1:45pm DSF Programs & Resources for Families Erin Reoyo - DSF Family Network Liaison
1:45pm-2:15pm From Awareness to Advocacy Austin Watson - DSF Family Network Coordinator
2:15pm-3:45pm Connect & Create - Breakouts for Patient Families
3:45pm-4:00pm Wrap Up
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