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From Heartbreak to Hope: A Family’s Mission to Catch a Cure for Dravet Syndrome
I never imagined I’d become the parent of a child with a rare disease. I never pictured a life built around emergency medications, seizures, feeding ...
Bentley’s Story: A Bright Light Through the Darkness of Dravet
As Dravet Remembrance Day approaches on June 15th, we’d like to share a heartfelt blog post written by Blake Fish about her son, Bentley. Bentley ...
Turn Awareness into Action this June!
Each year, Dravet Syndrome Awareness Month – observed from June 1 to 30 in the U.S. – provides a crucial opportunity to highlight the often-overlooked ...
See the Difference You Made – 2024 DSF Annual Report Now Available!
At DSF, we are guided by a commitment to transparency, accountability, and connection to our community. Each year, our annual report is more than just ...
DSF Receives Platinum Nonprofit Seal of Excellence
DSF is proud to announce that it has once again received the Platinum Seal of Transparency from Candid, the highest level of recognition offered by ...
Helping Families Manage the Cost of Care
Caring for a loved one with Dravet syndrome can lead to significant medical expenses. We understand that the need for support can arise at various ...
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