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Feeling overwhelmed by the rapidly changing policy landscape and its impact on the Dravet syndrome community?
At DSF, we understand that keeping up with the quickly evolving changes happening right now can feel overwhelming as you try to determine what the ...
Dravet Genome Study Update
Long-term outcomes for patients with Dravet syndrome can vary quite a bit. Some patients may have more significant impacts on cognition or speech, while others ...
Engaging with DSF in 2025
As we embark on a new year, I encourage you to make the most of your involvement with DSF by exploring the various programs and ...
2025 Day of Dravet Workshops
DSF’s Day of Dravet Workshops are a time for patients and their families to come together to learn about research and treatment options, connect with ...
DSF Community Book Club
We are excited to announce that DSF is launching its first Community Book Club and we can’t wait to share this experience with you! The ...
Staff Changes at DSF
We are excited to share some recent changes to our staff with the community! Melissa O’Bryan is joining our team as our new Administrative Assistant. ...
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