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2022 Conference Countdown!
There is just one-week left to register and join us at this year’s DSF Family & Professional Conference in Fort Worth, Texas, on June 23-25th, in collaboration ...
New Logo. Same Mission.
After twelve years, DSF is releasing an updated brand identity, which includes a new logo, colors, and font. We have refreshed our logo to reflect ...
Participate in Dravet Syndrome Awareness Month this June!
We are kicking off Dravet Syndrome Awareness Month on June 1st, and there are plenty of ways to participate this year! Your support and hard ...
Join DSF as we go Behind the Mystery of Dravet Syndrome!
As part of Dravet Syndrome Awareness Month this June, we were pleased to partner with The Balancing Act on their Behind the Mystery episode highlighting ...
DSF Parent Ambassador Introductions – Part 2
Last week, I had the honor of re-introducing our veteran Parent Ambassadors and introducing our newest Parent Ambassadors from the Midwest. This week, it is ...
DSF Parent Ambassador Introductions – Part 1
In April 2016, just 6 short years ago, we received the devastating news that our (then) 2 year old son had an SCN1A gene mutation. ...
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