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Genetic Therapy for Dravet Syndrome: 2022 State of the Field
When the Dravet Syndrome Foundation was established in 2009, there were no specific treatments for patients with Dravet syndrome and limited guidelines on best treatment ...
Transitioning to Adulthood for Patients with Dravet Syndrome
When Dravet syndrome (DS) was first discovered by Dr. Charlotte Dravet in 1978, there was not a clear understanding of the expected lifespan for someone ...
Stiripentol (DIACOMIT): History and New Expanded Approval
In July of this year, the US Food and Drug Administration (FDA) authorized the use of stiripentol (DIACOMIT) for patients with Dravet syndrome aged 6 ...
DSF Strategic Plan Update
Much has changed in the field of Dravet syndrome since the inception of DSF in 2009. In 2018, DSF debuted its 5-year strategic plan to ...
Host a Family Gathering with a Caregiver Connect Grant
Being the parent of a child with Dravet syndrome can be lonely and isolating. It’s easy to feel like no one else “gets it”, that ...
Be sure your child’s school team is seizure-ready!
Having a child with Dravet syndrome attend school can pose many challenges and concerns for parents. It is important that you give the school staff ...
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